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One year ago, Our daughter Lottie was just 2 years and 3 months old when she was diagnosed with Juvenile Idiopathic Arthritis (JIA). A chronic autoimmune disease that causes inflammation in the joints and can affect children of all ages.
Before this, we had never even heard of JIA. Like many people, we didn’t realise that children, even toddlers can have arthritis.
Looking back now, it’s heartbreaking to remember what Lottie was going through. She was in constant pain. Walking became difficult and her joints were swollen and inflamed. Her neck was so sore she struggled even to hold her head up comfortably.
At first we were told it might just be “growing pains” but deep down we knew something wasn’t right.
Eventually we got answers and a diagnosis of Juvenile Idiopathic Arthritis.
Starting treatment was a huge moment for our family. Slowly but surely, we began to see changes. Lottie’s pain started to ease, her mobility improved, and we started to see our happy, playful little girl return.
Today one year on, Lottie is doing things we once feared might not be possible.
She is running, playing with friends, and even Irish dancing. Recently she took part in her first Irish dancing feis, something that fills us with so much pride when we think about how far she has come.
While we are incredibly grateful for the treatment that has helped Lottie, many families are still searching for answers, diagnoses, and access to the care their children need.
That’s why we are sharing Lottie’s story.
On March 18th, World yOung Rheumatic Diseases (WORD Day), we are raising awareness of Juvenile Idiopathic Arthritis and fundraising to support research and help other children affected by this condition with all funds of this fundraiser going to Arthritis Ireland and Sligo University Hospital.
Every donation, no matter how small, will help support efforts to improve treatments, increase awareness, and ensure that more children receive the care they deserve.
If you’re unable to donate, simply sharing Lottie’s story can make a huge difference in helping more people understand that arthritis doesn’t just affect adults, it can affect children too.
Thank you so much for taking the time to read our story and for supporting Lottie and other children living with Juvenile Arthritis.
Organizer
Caoimhe Lucey
Organizer

