Help Lokesh, A Hemophilia Fighter

Hi. I am Sukhman Kaur from Edmonton, AB, fundraising for my friend Lokesh Goyal. He was diagnosed with one of the rare bleeding disorders called Hemophilia at the age of 2. Hemophilia disease is a lifelong thing that clutches him right from birth. As it is a severe bleeding disorder, this leads to spontaneous bleeding internally in joints causing severe and irreversible damage to them, translating him to being disabled and carrying immense pain 24x7. His knees, elbows, shoulders and ankles lost mobility, making him strive for normal body movement and mobility. Being a life-threatening disease, there is always a sword tied over his head and a constant danger of getting life-threatening bleeds in the brain, GI and muscles. All these complications shattered his dreams of leading an everyday life, making it a bunch of struggles and wrecking pain.

There is no permanent treatment for this problem, but controlling Hemophilia is possible by infusing life-saving medicine called Anti-Hemophiliac factor injection, one of the most expensive medicines on earth. One infusion, which lasts for just 72 hours, costs min 1000 USD, justifying its name of Royal disease. Monthly treatment expense clocks to 8,000 USD, thus making him on the verge of financial disaster as it, so resources are squeezing that it had forced him to give up all the treatment due to financial viability from last six months thus making him crippling for survival due to nonavailability of his life-saving medicine. He has no support from any organization or social security, which is day by day pushing him to permanent disability. Misery cup includes spending almost six years in a wheelchair, being unable to walk, elbows turned bad, ankle losing their mobility and shoulder getting frozen…. The list continues to be social and mental trauma as one shot of injection drains his one-month earnings.

Being a passionate web developer and system analyst, this disease has ceased his dreams completely. His career got greatly affected as his job as a computer teacher is to a great sea-saw journey. He is the sole bread-earner of his family, so things are getting really stressful for him. His urge to chase his dreams is put on the brake by this disease, making him sink into sheer helplessness, disappointment and mental trauma with the pressure of carrying himself and supporting his near family. He is just looking for that support lighthouse by which he can pursue his dreams and get free from the clutches of never-ending pain. In the above picture, Lokesh keeps smiling in deep pain due to a bad shoulder bleed with wet eyes.

I am conducting this fundraiser so that I can help him in some way. So, I request you all to participate as much as you can.

Thank You.