Help Logan get to Sydney for intensive therapies

39183398_1557724687373706_r.jpegThrough no fault of our own, I am now $4,000 short for Logans intensive therapy in Melbourne next month. I have been stressing the last few weeks on what options we have and a fundraising page was always my last option, this is our last resort. 

I did have all of this therapy saved for Junes intensive  but Oct last year I was told if I purchased Logans specialised car seat ($6k) that we were waiting on funding for, that I would be reimbursed. I stated I had his therapy money and that’s what we used as his safety was my priority. 7 months later I am still fighting to get it back which we don’t have a 100% guarantee will happen. Devastated, I feel awful, everyone knows I do not ask for anything but Logan needs this. 

Logan will be doing intensive therapy 3 hours a day, 5 days a week for 3 weeks starting June 17th -July5th in (Melb) and November 11th - 29th (Sydney).

Melbourne is $9873.38 and Sydney is $12,659 (that is not including petrol and food) I am $4,000 short for Melbourne and $13,659 short for Sydney.

Logan did a 3 week intensive 2 years ago in Adelaide, which I have uploaded a pic showing how well he looked in it.

In August Logan is 6. He is 100% dependant on me, Each day I feed him a soft diet, I dress him, I run him to numerous appts weekly, struggling to lift his wheelchair in and out of the car, I walk up stairs with him over my shoulder to get inside our house, I carry him to get him from point a to b because he cannot crawl or walk. I have been taking medication to now help with my back and shoulder pain I have from doing all his lifting. He is growing. The only thing I need him to do in his lifetime is to stand and walk, it will make our life so much easier and he deserves every chance he can get. Can you imagine doing all this for a 6 year old? It's not easy, mentally and physically. I dream of the day Logan can be a bit more independent and stand. I remember the days where I thought he would never sit, he learned a few months ago to go from laying down to sitting. He has determination we just need the right help.

For those who don’t know us, Logan was diagnosed with a rare syndrome called Pitt Hopkins Syndrome just before his 1st birthday. Not long after he was born I knew that he wasn’t developing the same as the other 3 children. At the time of diagnosis we were told only 8 in Australia had the same syndrome which I think has now grown to at least 30 out of Australian 25+million, so pretty rare. He has a dual diagnosis of Pitt Hopkins and Autism. Logan is non verbal but is very loving, he loves to give hugs and kisses and can do some basic sign language whilst we work on using an iPad for communication. He is cheeky, loves water, and loves to be pampered.

Many children gain more progress towards their goals in three weeks of intensive therapy than they do in a whole 12 months of ongoing traditional therapy.

Unfortunately, In Tasmania, there is no where that we can do ‘intensive therapy’ and we have not found a place in Tasmania that offers TheraSuit and SpiderCage therapy.

Melb intensive is $6,000 and Sydney $7875.00 then we have boat fare, 3wks accomodation + other expenses which is adding on close to another $6,000 x 2 and were looking at close to $25,000 in 5 months. I don’t know what I was thinking when I booked both these sessions besides winning the lotto except for the fact that I  have seen great results through intensive therapies with other children and that logan 100% needs this.

This is from the NAPA website...
‘The TheraSuit intensive program is designed to increase functional outcomes of traditional therapy services.

While framing the body, the suit provides support and resistance simultaneously. It assists the body to be in correct alignment, while the bungee cords provide a comforting compression to the joints and distribute a vertical weight bearing to the patient’s entire body. This improves and changes proprioception (pressure from the joints, ligaments, and muscles), reduces the child’s undesired reflexes, facilitates proper movement and provides additional weight bearing distributed strategically throughout the body.

This sends strong messages to and from the brain and central nervous system bringing about an instantaneous increase in body awareness, which leads to improved motor planning. All the while the child has to work against the effects of the additional gravity from the weight-bearing component of the bungees. They build muscle at a faster pace and the skills they learn are amplified to the central nervous system. Performing specific exercises and functional activities while in the suit results in improved motor skills, which carries over into the child’s daily life when they are not in the suit.’

Again, I hate to ask for help, its like saying goodbye to my pride of having everything 'together' this is the last thing I wanted to be doing but I'm desperate, I am not expecting or asking for a person to donate large, even $5 is $5 less off our total. We are very grateful for anything.

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Dannielle Mills 
Tranmere TAS
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