Help Logan Fight Rare Brain Tumor

March 2025 Update:

Logan is on his 4th year of fighting this beast of a tumor. After a successful surgery in October 2023, he was stable for 10 months. Unfortunately a new growth was found in August 2024. After monitoring the growth for a few months the decision was made to enroll Logan in a clinical trial in Denver Colorado which will last 26 months. Logan will begin the trial medication on March 24th and will remain in Denver for 3 weeks to monitor for any serious side effects. Logan and his family will continue to make monthly trips to Denver for the next 2yrs for check-ups. We would like to help Logan's family with their travel expenses as they take on this new challenge. We also ask for thoughts and prayers for safe travels, that Logan's body will handle the medication well and that the medication will be successful in stopping tumor growth.

2023 Story:

Logan is the 10yr old son of my friend Katie. He has been fighting a rare brain tumor for almost 2 years. An MRI 2 weeks ago unfortunately showed new growth and he and his family must travel to Memphis Tennessee for treatment. I'm organizing this campaign to help cover the overwhelming medical and travel costs coming their way. You can read Logan's whole story, as told by his mom below:

Logan was diagnosed with Craniophayrngioma on 11/23/2021 when he was 9yrs old. Craniopharyngioma is a brain tumor made of both solid tissue

and fluid filled cysts that grows on the pituitary gland. Although it is not

cancer, it is very aggressive and has one of the lowest quality of life ratings

post-treatment for pediatric brain tumors. Logan underwent an emergent

brain surgery, followed by 30 rounds of proton radiation. Four months

later he had regrowth and after multiple procedures over the course of 4

months, was declared stable in November 2022.

Craniopharyngioma damages the body’s ability to make hormones which

causes a variety of long-term conditions with chronic symptoms such as

pain and fatigue. We have spent the last 9 months learning how to manage

Logan’s specific chronic needs, as well as spending time as a family and

enjoying getting back to a sense of normal.

On August 21, 2023 Logan had a follow-up MRI which showed new tumor

growth in a new location. Per Logan’s doctor, ‘cystic craniopharyngioma’s

are one of the most challenging tumors to treat in the world of pediatric

neuro-oncology...they are very difficult to remove fully and can grow back

from just one cell left behind’. Due to Logan’s previous surgeries and

radiation, as well as the location of the new growth, this surgery poses

many challenges that come with hefty risks and side effects such as

permanent loss of his sense of smell.

Logan’s tumor is incredibly rare and the doctors who have some of the

most experience with this tumor are located in Memphis, Tennessee. To

give Logan the best chance for a successful surgery with minimal side

effects we are working towards transferring his care to Le Bonheur

Children’s hospital in Memphis with the goal of surgery happening the first week of October 2023.