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Updates: On 5/1 Liyah was clinically discharged from the cardiology unit with close follow ups. She was transferred to inpatient physical therapy where it almost became a nightmare. Due to some changes that needed to be made as they claimed in order to have her as inpatient she ended up losing her insurance altogether. Here I am now with a child with a heart condition and lots of follow ups and daily meds uninsured. Not only due I have a helicopter bill for 78k, but also one outpatient cardiology appointment running me 10k. That doesn’t include the hospital admission itself with surgeries and meds. I’m still not working, fmla ends soon and I must return to work to be able to provide for Liyah. Although the toughest part of this battle is over because she won the fight for her life… the aftermath is hurting me still. The bills, the uneasiness of having limited time to find my own place again… I am just trying to keep my head above water and not drown in medical debt. If you can kindly help I would greatly appreciate it. Every cent counts in this situation as Liyah continues to fight with her daily meds and therapies
I want to share a very very private event that is going on currently in my life with you all. On 3/26/25,my birthday, I took my 10 year old daughter Liyah Paige Byrd to the hospital as she is battling a very nasty case of Flu B. It had already been quite a few days on meds and she showed no signs of progressing. I went to a hospital that then transferred me to another hospital as they didn’t have a pediatric ward. I was in search of answers that weren’t found. We were in the second hospital and to no avail Liyah was not getting any better. In fact she was getting worse. When they told me they couldn’t find what was wrong and needed a speciality doctor to find out what’s going on, I decided to take it to the hospital I had my surgery at in 2019. Robert Wood Johnson in New Brunswick NJ. I’m glad I followed my gut. I am glad I advocated for my baby to get her sent to this hospital of MY choice and not allow them to force me to the hospitals they wanted me to go to simply because of a “partnership”they have. Well, I was correct … my choice of hospital discovered it….
Liyah was suffering heart failure…
My entire universe as I knew it fell totally apart. I refused to believe it. It still all feels so surreal. But here we are now. The doctor told me he was going to have to intubate her as her heart was getting weaker and weaker and was ready to give up at any moment. Simply intubating her wouldn’t be enough as her heart was still failing. Every second was critical. So imagine being told your baby’s heart is about to stop at any moment and she needs to be transported to a specialized cardiology doctor. Thank God for the Children’s hospital of Philadelphia. We got an emergency helicopter and transported her here where she has been stabilized and thanks to the amazing staff here that have kept my baby alive. Liyahs heart is still extremely sick. Not only do I ask for prayer at this moment but I am also asking if in the kindest of your hearts you can help with anything, anything at all. As I am now currently out of work and will have no income coming in. Having a child in the PICU (pediatric intensive care unit) is expensive on its own with an average day of about 5k per day. Not to mention all the devices that are being used. So you know all these hospital costs are not cheap. I will be in debt well over a million dollars after this. I know times are extremely pressing right now. But anything will help. Liyah would have gladly give every last one of you her last because that’s the heart she has…. So please guys…. Let’s support her heart back. even if you just repost… it’s more than appreciated. Again, I kindly ask everyone to please not start flooding my inbox with questions and kindly just accept what I put up here. I am extremely stressed, extremely overwhelmed… my world is in shambles…. So please respect my request… my privacy and lift me in your prayers. I have been extremely hesitant to want to share for many reasons and also because I didn’t want to perform any real life trauma for the world to see. But I’ve been looking at it wrong this whole time. I kindly ask everyone to please respect my time and privacy at this moment as I am battling one of the worst battles of my life but I have surrendered this battle to the lord and I am trusting Jesus Christ to perform his miraculous wonders as he has already proven to do so. I kindly ask that when you see this, you accept the info given and respect the fact that I have repeated details over and over for days now and I’m tired. I’m tired of reliving the pain,the anguish, the anxiety, the negativity… I’m tired…. I let go and I let god and I’m only for the positive at the moment. I would like to request some quiet. Please DONT flood my inbox with questions or take it to my phone blowing it up. Respectfully my phone is currently my direct line to all the doctors. And would like to keep my line as clear as possible. I appreciate everyone for all their understanding; love and support during this difficult time



