Molly is a six year old little girl diagnosed with CHARGE syndrome, which is rare condition causing an array of birth defects, medical problems, and developmental issues.

In her short time on earth, Molly has endured countless surgeries and hurdles including a compromised airway/tracheostomy, congenital heart disease, and high risk scoliosis (to name only a few). Most recently, she found out she’ll have a minimum two month stay at Seattle Children’s for a halo placement for spinal traction/vertebrae fusion, limiting chest growth and possibly compromising her lung function. Molly has to be re-trached for these procedures.

To top this news off, her night shift nurse benefit has recently been denied.

What this means is her parents are now her night shift nurses caring for her g-tube, monitoring her oxygen saturation levels and CPAP machine, and tending to her various other medical needs in addition to the daytime care they provide for her.

Molly, her parents, and her brother Hank are incredible people who live quite challenging and extraordinary lives.

Please help get Molly the care she needs to survive. We are looking for donations so her parents can pay their agency out of pocket to send a nurse or caregiver for overnight care. We are hoping fundraise enough to get them a year of care! Approximately $190 pays for one night.

Thank you all so much!