Money needed 4 MEcfs lawyer in 7th Circuit Court

I was finally approved for $924/mo SSI benefits, after most of 8 years unable to work. If I receive donations, that amount will be cut from SSI, so I deleted my bank account from GoFundMe.

If possible, I still need $7,500 to retain a lawyer who said he accepted me. Who has 7.5k after unable to work 8 years?? 10 other lawyers, that I got much sicker after finding them myself, all declined over 7 months of work.

On top of this, I just got notice Friday, Dec 23rd Community Care of WI wants to kick me out of assisted living on Monday, the day after Christmas. I made legitimate complaints of filth and bleeding money from paying 90% of SSI I finally got for food 2x: room and board, supposed to include 3 prepared meals a day and a snack, but not having any food 4 me I could eat 1.5 weeks into residency (on common ME/CFS keto diet, supported by studies and requested 2x before I moved in). Then when they bought food, 3 pieces of cooked chicken were presented in 4 weeks I've been here. I've cleaned poop off toilet seat a dozen times and tried to kill many fruit flies, while staff blares TV most hours, right outside my door with 3" gap underneath. They often sleep on the schedule. I like them all, but it's too much to try and remedy. They leave cooked food out 3.5 hours.

So Community Cares solution is to kick me out before finding other housing for me. That and someone there put on my record I'm a hustler and manipulator! No, my life is actually this shit, with a crap disease most doctors aren't taught per CDC, and that toxic family doesn't believe. Actually a common problem with a disease described many times as hellish or living death on public tweets, half of which may be for the negligence and disbelief on top of suffering. Many lose support from friends, family or spouses because we're so miserably sick or they don't believe us.

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Thank u very much! I've been miserably sick with post-viral ME/CFS 14 years, like Long Covid, but denied disability benefits 3X in 8 years unable to work. I go 3-16 days unable to shower. Debilitating insomnia up until 4 or 8 am is my 1st symptom to worsen after "minor physical, mental or emotional exertion" (CDC). Then my pain and fatigue worsen to the point I can't walk. I go hungry for hours too fatigued to get food. I'm supposed to have state home care workers, but have gone without help 2 months at a time in the worker shortage. Training 10 new workers a year is painfully exhausting for me.

I've been living in a 6x12' room in a rooming house with sex offenders, drug users, bed bugs, urine stains on my bed, urine on the floors, poo on toilet seat, puke smell from not being fully cleaned up, flies, mildew and mice since October 2021, without air conditioning in 90° heat.

I have a free transport wheelchair that only works for someone pushing me, because I need a wheelchair accessible place to live. My room is on the 2nd floor and the house entrance is up a half flight of stairs. They offered me a bigger more expensive room on the 1st floor, but I declined after finding a live bed bug.

CDC: "ME/CFS is a biological illness, not a psychologic disorder. Patients with ME/CFS are neither malingering nor seeking secondary gain. These patients have multiple pathophysiological changes that affect multiple systems."

"A new study by the CDC and WebMD shows that lack of awareness about ME/CFS is widespread. Most doctors and people with ME/CFS don't know the name of this illness or anything else about it." -WebMD, April 2022

"More education for doctors, nurses, and other healthcare providers is urgently needed" per CDC in 2018, but somehow never got done!

I'm financially dependent on my toxic mother 6 years. When I was too weak to lift my head from the table, she waited until relatives left and came over yelling, cursing and grabbing me, saying I looked crazy and was being rude. She claimed she was trying to hold my hand in front of my cousin, but at the time she was yelling, "I don't fucking care if you're sick!" I recorded her because she also denied telling me to kill myself, that I'm evil, and to get a sugar daddy. Yet she tells everyone how crazy and awful I am for recording her.

I'm limiting donations to $3,000 total, because if my current resources go over $2,000, my current SSI application would be denied! ($3,000-$1,400 already received and used in over a year's time=$1,600.)

(Click on the 4 cornered box in lower right to make video full size.)

1st video showing me very sick with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome/ Post-Viral Syndrome (like Long Covid)

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Most don't understand VARIABLE disability w exertion and stress bcuz of MEcfs negligence and ignorance.

 

So these "professionals" reviewing my case r ill informed and reading comments in my medical visits from ignorant doctors, often b4 2017.

 

It USED TO be considered a psychological problem, before studies convinced the CDC in 2017 to change to (ME/CFS) "is a serious, long-term illness that affects many body systems."

U have to call homeless shelters daily to see if they have an opening, and leave daily 10 am- 4 pm. I wouldn't make it upright 1 day with the stress making my ME/cfs symptoms worse.

Please sign/share my disability petition, thanks! http://chng.it/mHhSvdPYg2

I've been miserably sick 14+ years, with progressively lower threshold for a relapse and longer recovery times (in months or years.) After mom had to stop paying our rent to save for dad's nursing home, and my boyfriend and I broke up in January, just looking for part-time online jobs in Feb/March put me in full, miserable relapse as of April 2021. Then packing & moving to a rooming house Oct 2021 put me in miserable relapse again.

Any stress or deadlines gives worsening insomnia, so for me its 14 years of sleep deprivation torture. Then chronic infections with immune system problems, back pain (adrenal glands, from stress dysregulation of HPA axis), problems walking, coordinating my limbs (ataxia), thinking, focusing and concentrating. I feel like I'm drunk.

Autopsies (yes it can kill you!) have shown 'severe neuronal damage' in executive function, like organizing/ planning (folding laundry for me), especially in movement centers. "Encephalomyelitis" means inflammation of your brain, which usually happens because of severe infection. 

There is no approved cure or treatment for ME/CFS, except trying to manage symptoms. Primarily by staying within your "energy envelope" per the CDC's updated guidelines. 

Now many studies show "people with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and sleep problems. ME/CFS may get worse after people with the illness try to do as much as they want or need to do. This symptom is known as post-exertional malaise (PEM). Other symptoms can include problems with thinking and concentrating, pain, and dizziness."

https://www.cdc.gov/me-cfs/index.html

I have a lot of memory and concentration problems, with chronic insomnia and also when in Post-Exertional Malaise from doing too much. On good days in good months, I can save up my energy to go bike riding. But that same day, or the day before or after, 5 minutes of folding laundry can exhaust me and make me bedridden for 3-5 hours.

Its unpredictable nature makes it impossible to make concrete plans, such as a work schedule. Even thinking of deadlines can give me worse insomnia. 

I 1st had symptoms in college after the flu, and the insomnia and fatigue took months to get better. Over the years, almost any cold, flu or infection takes longer and longer for me to recover from. 

I lost my 11-year job in 2013, but was not diagnosed until 2015, before it was considered a valid disease in 2017. My doctor never even told me of his diagnosis, much less advising me of any treatments. I found it on paperwork months later. 

I recovered enough in 2016 to work 2 part-time jobs, but again got horribly ill from the exertion and stress, and lost one in 6 weeks, the other 6 months. Though I didn't go into work the entire last month with a doctor's excuse, hoping to get better. One day I was wheeled out on an office chair, which happened several times at my old job!

Now another 4 years later, just searching for a part-time online job, and getting 3 unsuccessful interviews has made me relapse again. Even the positive stress of finding jobs I'd love made me worse!

The last years at my 11-year job were very isolating, coming home to crash and living in filth, unable to clean. I started using plastic forks and paper plates to eat with no energy, and still do. I heat up frozen vegetables and meats in a ziplock bag.