Please Help Lindsay Get the Proper Care She Needs
Donation protected
Greetings Everyone,
We have started a fundraiser for a dear friend, Lindsay to help her get the proper care that she needs. Our focus is to raise enough for her to live and survive and to also find some mental health options in the process. We also want her to be able to get some equipment so that she can pursue her career as a voice actor, which is one of her ultimate dreams. Lindsay is one of the sweetest and lovely souls that I've ever met. She has just been dealt a very difficult hand in life, one that she wouldn't wish on anyone. We implore you to read what Lindsay has written below. Her story is definitely one of a kind. Please feel free to donate whatever you can to help our very special friend during her most critical point in life. Much love and respect to you all.
Mike & John
LINDSAY'S WORDS
It’s hard to put my situation into a few words, or even words that most will understand. It is complicated, to say the least. I grew up having health problems and always knew there was something more going on from a young age. Still, I was very active and pushed myself well into adulthood until I physically could not anymore. I had chronic pain and was always getting sick. Many years of doctors failing me, and telling me I was too young to have this and that and be in so much pain. I began having cyclic vomiting episodes at a very young age, and as I got older, the most identifiable triggers were my menstrual cycle and stress. I was also diagnosed with fibromyalgia when I was still in high school, as well as GERD and a hiatal hernia after having an endoscopy. Little did I know this was only the beginning of a lifelong battle of many health issues. I continued to struggle with various health issues and always knew that there was more going on than doctors were willing to look into. I spent several years without health insurance and only managed to get it because of the affordable care act (Obama care). Once I was able to see doctors, I was persistent because my health issues kept getting worse, despite eating very healthy and still pushing myself to be active. Before I got back on insurance, I tried everything from plant medicine, Chinese medicine, ayurvedic medicine, ozone therapy, and TONS of vitamins and supplements, but nothing ever seemed to help. In fact, I only got worse and worse so I decided to try again with western medicine doctors once I was insured for the first time in years. It was at this time I was finally given a name for the vomiting condition I had been suffering through for many years and still suffer through (even more so now) which is Cyclic Vomiting syndrome, which is sometimes referred to as an abdominal migraine. It is actually a neurological condition where the brain fails to communicate with the gut and gets stuck in these traumatic vomiting cycles. There was so much going on with me at once that I felt like I was dying so This time I was very persistent. I always had issues with my immune system. My mother had lupus and died from it and I always had a feeling I had Lupus as well. It is very hard to diagnose, and often people spend years trying to get a diagnosis. I was diagnosed first with chronic Lyme disease. I had an untreated Lyme infection plus co-infections that turned into much more of a problem because it had gone undetected for years. Lyme is also hard to diagnose. All during the time I spent helping take care of my mother before her passing, I was also actively dealing with my own health issues. I was beginning to get some answers that I had been looking for most of my life. The insane number of things I have been diagnosed within the last 7 years is beyond what I or anyone could ever imagine. A few years ago I was finally diagnosed with Lupus, as well as Primary Immunodeficiency which means my body doesn’t create enough antibodies on its own so I have to do antibody replacement therapy infusions (infusing blood plasma) once a week so that I have the antibodies to keep myself from getting very sick and dying. The list of things I have dealt with over the past several years is just so long I can’t even list it all. I have had serious issues with my eyes including glaucoma, iritis, keratitis, anisocoria, and I was also diagnosed with endometriosis, Hypermobile Ehlers-Danlos Syndrome (which causes loose unstable joints that dislocate easily), major swelling issues (knee, face, etc), Dysautonomia (dysfunction of the autonomic nervous system) Migraines, Osteoarthritis, Degenerative Disc Disease, Bone spurs, various neurological issues, Orthostatic hypotension as well as high blood pressure issues and high heart rate. Seizures, gastritis, chronic bronchitis, premature menopause at the age of 35. My vomiting episodes which used to be triggered by my menstrual cycle have increased drastically since my cycle just stooped in Feb of 2020. Since then I have had SO many of them that I am traumatized and terrified of having another. I don’t know how many more I can handle. They have also destroyed my teeth in a serious kind of way. I have teeth falling out and crumbling from the stomach acids from vomiting so violently so often. It is causing me severe pain and I am very self-conscious of my teeth now. Every time I have a vomiting episode a tooth crumbles or breaks into many pieces, It is terrifying. I need so much dental work I will never be able to afford it. I also have mast cell activation syndrome which caused me to become allergic to almost everything. I developed food allergies of all sorts and allergies of every kind possible. I also had serious complications from a spinal tap a few years ago. I ended up with a spinal fluid leak that they had to repair by doing what they call an epidural blood patch. For some reason, my ability to manage my chronic pain and many of my other symptoms became much more difficult after this traumatic experience with the spinal tap. So much has happened since I can’t even keep up with it all anymore. My health issues got a lot worse after my mother passed away, as well as my mental health struggles. I already suffered from severe PTSD from a very traumatic accident I had several years prior. I never had anxiety before that and now I suffer from intense panic attacks on a daily basis and severe mental breakdowns, so bad I don’t know how I have managed to survive so many of them. The past few years I have spent pretty much all of my time either very sick or going to countless doctor's appointments and tests and blood works and scans and you name it. It’s like I have a full-time job of being sick and going to doctors. I am currently seeing many specialists, and have been for years now. I see a Neurologist, Rheumatologist, Immunologist, Allergist, Pain Management, Physical Therapy, Ophthalmologist, Endocrinologist, Pulmonologist, Gastroenterologist, Menopause Specialist, etc. No matter what I do, how many doctors I see or protocols I follow, or medications or supplements I take, I don’t seem to get better, only worse. Much of what I have going on is incurable but can go into remission with the right treatments. Unfortunately when you have so much going on at once, it is not so easy to figure out what the right treatments are, or if they interfere or interact with other medications or treatments. Doctors don’t communicate with each other. I have had to be my own health advocate and do everything on my own for years with very little help or support (aside from a few close friends who have been rooting for me along the way). It is very hard to live with something my mother died from, plus a lot more, knowing how much she had to go through and how strong she had to be and that she did it all for me and my brother…so despite how many times I have wanted to give up, I haven’t because I know my mom suffered through so much pain for me, and fought till she couldn’t anymore, and that is what keeps me going. It has gotten drastically more difficult for me, as I am now in a place where I am too sick to work. I am working on trying to create a career for myself which I can do at home on my own time when I am feeling well enough and able, but the harsh reality I have had to face is that it is going to take time, and the ability to not have to constantly be losing my mind over how I am going to afford to keep surviving. My body and brain used to work in harmony together, but now it’s like they are at constant war with each other, which technically they are. I am having the most difficult time in my life in regards to my health and my ability to function and work. It has become a problem I have no idea how to even begin to solve, and I am desperate for help.
We have started a fundraiser for a dear friend, Lindsay to help her get the proper care that she needs. Our focus is to raise enough for her to live and survive and to also find some mental health options in the process. We also want her to be able to get some equipment so that she can pursue her career as a voice actor, which is one of her ultimate dreams. Lindsay is one of the sweetest and lovely souls that I've ever met. She has just been dealt a very difficult hand in life, one that she wouldn't wish on anyone. We implore you to read what Lindsay has written below. Her story is definitely one of a kind. Please feel free to donate whatever you can to help our very special friend during her most critical point in life. Much love and respect to you all.
Mike & John
LINDSAY'S WORDS
It’s hard to put my situation into a few words, or even words that most will understand. It is complicated, to say the least. I grew up having health problems and always knew there was something more going on from a young age. Still, I was very active and pushed myself well into adulthood until I physically could not anymore. I had chronic pain and was always getting sick. Many years of doctors failing me, and telling me I was too young to have this and that and be in so much pain. I began having cyclic vomiting episodes at a very young age, and as I got older, the most identifiable triggers were my menstrual cycle and stress. I was also diagnosed with fibromyalgia when I was still in high school, as well as GERD and a hiatal hernia after having an endoscopy. Little did I know this was only the beginning of a lifelong battle of many health issues. I continued to struggle with various health issues and always knew that there was more going on than doctors were willing to look into. I spent several years without health insurance and only managed to get it because of the affordable care act (Obama care). Once I was able to see doctors, I was persistent because my health issues kept getting worse, despite eating very healthy and still pushing myself to be active. Before I got back on insurance, I tried everything from plant medicine, Chinese medicine, ayurvedic medicine, ozone therapy, and TONS of vitamins and supplements, but nothing ever seemed to help. In fact, I only got worse and worse so I decided to try again with western medicine doctors once I was insured for the first time in years. It was at this time I was finally given a name for the vomiting condition I had been suffering through for many years and still suffer through (even more so now) which is Cyclic Vomiting syndrome, which is sometimes referred to as an abdominal migraine. It is actually a neurological condition where the brain fails to communicate with the gut and gets stuck in these traumatic vomiting cycles. There was so much going on with me at once that I felt like I was dying so This time I was very persistent. I always had issues with my immune system. My mother had lupus and died from it and I always had a feeling I had Lupus as well. It is very hard to diagnose, and often people spend years trying to get a diagnosis. I was diagnosed first with chronic Lyme disease. I had an untreated Lyme infection plus co-infections that turned into much more of a problem because it had gone undetected for years. Lyme is also hard to diagnose. All during the time I spent helping take care of my mother before her passing, I was also actively dealing with my own health issues. I was beginning to get some answers that I had been looking for most of my life. The insane number of things I have been diagnosed within the last 7 years is beyond what I or anyone could ever imagine. A few years ago I was finally diagnosed with Lupus, as well as Primary Immunodeficiency which means my body doesn’t create enough antibodies on its own so I have to do antibody replacement therapy infusions (infusing blood plasma) once a week so that I have the antibodies to keep myself from getting very sick and dying. The list of things I have dealt with over the past several years is just so long I can’t even list it all. I have had serious issues with my eyes including glaucoma, iritis, keratitis, anisocoria, and I was also diagnosed with endometriosis, Hypermobile Ehlers-Danlos Syndrome (which causes loose unstable joints that dislocate easily), major swelling issues (knee, face, etc), Dysautonomia (dysfunction of the autonomic nervous system) Migraines, Osteoarthritis, Degenerative Disc Disease, Bone spurs, various neurological issues, Orthostatic hypotension as well as high blood pressure issues and high heart rate. Seizures, gastritis, chronic bronchitis, premature menopause at the age of 35. My vomiting episodes which used to be triggered by my menstrual cycle have increased drastically since my cycle just stooped in Feb of 2020. Since then I have had SO many of them that I am traumatized and terrified of having another. I don’t know how many more I can handle. They have also destroyed my teeth in a serious kind of way. I have teeth falling out and crumbling from the stomach acids from vomiting so violently so often. It is causing me severe pain and I am very self-conscious of my teeth now. Every time I have a vomiting episode a tooth crumbles or breaks into many pieces, It is terrifying. I need so much dental work I will never be able to afford it. I also have mast cell activation syndrome which caused me to become allergic to almost everything. I developed food allergies of all sorts and allergies of every kind possible. I also had serious complications from a spinal tap a few years ago. I ended up with a spinal fluid leak that they had to repair by doing what they call an epidural blood patch. For some reason, my ability to manage my chronic pain and many of my other symptoms became much more difficult after this traumatic experience with the spinal tap. So much has happened since I can’t even keep up with it all anymore. My health issues got a lot worse after my mother passed away, as well as my mental health struggles. I already suffered from severe PTSD from a very traumatic accident I had several years prior. I never had anxiety before that and now I suffer from intense panic attacks on a daily basis and severe mental breakdowns, so bad I don’t know how I have managed to survive so many of them. The past few years I have spent pretty much all of my time either very sick or going to countless doctor's appointments and tests and blood works and scans and you name it. It’s like I have a full-time job of being sick and going to doctors. I am currently seeing many specialists, and have been for years now. I see a Neurologist, Rheumatologist, Immunologist, Allergist, Pain Management, Physical Therapy, Ophthalmologist, Endocrinologist, Pulmonologist, Gastroenterologist, Menopause Specialist, etc. No matter what I do, how many doctors I see or protocols I follow, or medications or supplements I take, I don’t seem to get better, only worse. Much of what I have going on is incurable but can go into remission with the right treatments. Unfortunately when you have so much going on at once, it is not so easy to figure out what the right treatments are, or if they interfere or interact with other medications or treatments. Doctors don’t communicate with each other. I have had to be my own health advocate and do everything on my own for years with very little help or support (aside from a few close friends who have been rooting for me along the way). It is very hard to live with something my mother died from, plus a lot more, knowing how much she had to go through and how strong she had to be and that she did it all for me and my brother…so despite how many times I have wanted to give up, I haven’t because I know my mom suffered through so much pain for me, and fought till she couldn’t anymore, and that is what keeps me going. It has gotten drastically more difficult for me, as I am now in a place where I am too sick to work. I am working on trying to create a career for myself which I can do at home on my own time when I am feeling well enough and able, but the harsh reality I have had to face is that it is going to take time, and the ability to not have to constantly be losing my mind over how I am going to afford to keep surviving. My body and brain used to work in harmony together, but now it’s like they are at constant war with each other, which technically they are. I am having the most difficult time in my life in regards to my health and my ability to function and work. It has become a problem I have no idea how to even begin to solve, and I am desperate for help.
Co-organizers (2)
John Marks
Organizer
Sebastopol, CA
Lindsay Timbers
Beneficiary
Michael Davis
Co-organizer