Help Lily-May get around the house!
Donation protected
This is my gorgeous grandaughter Lily-May.
Lily-May was diagnosed with an extremely rare genetic disorder called GATAD2B or GAND for short!
There are only 315 known cases of GAND in the entire world and every 1 is unique so Lily-May is an extremely special little girl.
In easy terms GAND means Lily-May can't talk, walk, eat or do any normal things a three year old can do but despite all the hurdles she is a strong, brave, loving and exceptionally happy little girl!
Lily-May desperately needs a lift, ceiling hoists and wet room at her home just to make everyday life possible. Being almost 4 and not being able to get to any room of the house without being carried is becoming almost impossible and extremely hard work for her parents to safely get her around the house and although government help is meant to be available, Lily-May has already been waiting a year and it might be another 2 years before the help arrives.
Please help me to raise as much money as possible to help pay towards a lift from the living room into Lily-May's bedroom, 2 ceiling hoists, one in her bedroom to enable Lily-May to get in and out of bed and one in the living room to get in and out of her chairs and a wetroom so she can have a shower! These three things have been quoted as costing £30K but would make Lily-May's and her mummy and daddy's lives so much easier.
Even the smallest donation or share is very much appreciated.
Thank you for taking the time to read this!
To read more about GAND you can click the link below -
Organizer
Tina Snapes
Organizer