Lily is a bright and bubbly 13 year old from Eastwood in Essex. She loves school, cooking, skincare, music and all the other things kids her age enjoy.
In October Lily was diagnosed with a malignant brainstem tumour. Due to its location they cannot remove it and in the UK treatments are just not available. Lily has undergone Radiotherapy which has reduced her symptoms and she now recovers well at home with her parents and younger brother Josh.
After extensive research there are clinical trials emerging in the US that show very promising results. Some of our friends and family have already kicked off some successful fundraising events for us.
However, we have been advised for a years treatment in the US it will cost around £300,000. This includes the cost of the trial, accommodation, flights and medical treatment she may need while she’s there.
As a family we are doing all we can to raise this money however being such a massive amount we had to make the tough decision to set up this go fund me page.
Nothing prepares you for any of this. We now face the realisation that our care free life is over and now we are caught up in hospital appointments, an entourage of doctors and consultants.
Life can change in an instant. No warning, no reason. Please share this page, donate if you can or just share our events.