Lilly was born with a rare skin condition called GCMN (giant congenital melanocytic nevus). This skin condition is developed during embryologic development and there’s no way to know about it until your baby is born. GCMN is only found in approx. 1 in 500,000 babies.

With this comes a higher risk for Lilly to develop melanoma along with a condition called NCM (Neurocutaneous Melanocytosis). Hearing all of these big words and “what ifs” about your little newborn baby causes so much anxiety during a time when you are supposed to be soaking in these precious moments.

We luckily have found amazing support through the Nevus Outreach program. Within hours of becoming a member, we had multiple moms reach out to us giving us reassurance and amazing resources for information on these conditions.

Every 2 years the Nevus Outreach program hosts a conference for people with nevi and their family to come together to learn from the most knowledgeable in the field and to find community. The conference is held in late July and is an amazing opportunity for our family to learn even more about Lilly’s condition and to meet other families going through the same thing as us!

With the conference being so close, we are hoping to raise money to help with the cost of the conference, along with travel and our hotel stay.

Lilly and the rest of our family appreciates any support you are able/willing to give!