Help Lillianna Get to Boston for Answers

This is my daughter Lillianna she’s 5 years old and is such an outgoing, funny and sweet girl. Lilli has a arachnoid cyst on her brain as well as something on her spin that swells up with fluid. As of right now she is losing all mobility and has days where she is bed bound. She cries everyday from the pain… she is a patient of Phx children’s hospital but we were recently told they were no longer able to help us. They told us to go to Boston to see if we can get answers as they have no idea. She has seen every specialist we can think of. Lilli is also diagnosed with autism as well as her two brothers. I stay home as I don’t have outside help with the kiddos. Lilliannas insurance will not cover out of state visits even with the referral. We’ve been battling this for almost two years and are still without answers or help. Watching my daughter cry because she can’t walk or is in pain is heartbreaking. We just need answers and right now Boston is our only hope. The older she’s getting the worst her symptoms are getting. Please help us get to Boston.