#Aloha for Liam

This is the life of Liam. Liam is the most sweetest, precious 2 year old boy. Since his birth he has had a lot to over come. He had a stressful delivery by vacuum assist. And when he was finally laying on his mommies chest we were talking to him and all of a sudden he lifted his head and made a sound as if to tell us he is fine, don't worry. From that point on he has been such a strong precious little boy. He has had to endure so much pain in his life. He was diagnosed with jaundice and infant torticollis. And then at 4 months he wasn't meeting any milestones, and he was diagnosed with having low muscle tone. So he started to get massage therapy to loosen up his muscles. And also physical therapy to help him with sitting up and crawling. Liam was starting to sit and get up on his knees, he was making good progress. And then a few days before his first birthday he started to have seizures. We had to take him to see a neurologist. The seizures were so mild that even the neurologist couldn't tell he was having them. But he needed testing done to figure out what was causing the seizures. So Liam was admitted into the hospital to have a series of test done, which was an EEG, MRI, blood test and genetic testing. Liam spent his 1st birthday in the hospital. All the test that was done they found nothing that would cause the seizures. So they put him on seizure medication and his seizures got so much worse after that. They had to find the right dosage and each change in dosage would take 24 hours before we knew it was working. It
took a total of a month to get the right dosage of medication for the seizures to go away. And that was the worst month of our lives. Thank God on 12/15/16 he was seizure free. The doctor said he would have to take this medication for two years. That was so hard to understand and except, to be putting this strong medication into such a tiny body. In the next year and a half going back and forth to the other island to see the doctors and get more genetic testing and have more EEG test done to rule out everything that could be causing the seizures. This left a financial strain on this young family. He will need another MRI at the age of three to see if their is any changes to his brain from the seizures or medication. When we read about the medication that he is on and the possible side effects they could be so damaging. They actually could be stopping him from learning and reaching some of his milestones. Because since his seizures he has had a hard time, still struggling to crawl, sitting up, using his hands, chewing, walking, talking and he was having trouble with his eyes turning in, but that's getting better. And he still eats puréed food because he can't chew. All the genetic test he has had showed nothing. What Liam has been through he has always been the happiest boy with always a smile on his face and has the cutest laugh ever heard. We all Love Liam so much we want the best for him. We want him to be able to have a normal life. So now we are moving to get him better treatment. He needs intensive treatment to help him sit, stand, chew, talk and walk it's going to be expensive. So we ask for your kindness and prayers on this journey of Liam's, he needs all the love and support he can get. Thank You so much.

Donations

  • Barb Douglas 
    • $50 
    • 31 mos
  • Julia Kelly  
    • $20 
    • 36 mos
  • Kathryn Majorki 
    • $200 
    • 37 mos
  • Gareth Keen 
    • $500 
    • 37 mos
  • Julie Kunz 
    • $100 
    • 37 mos
See all

Organizer

Teresa Alayvilla 
Organizer
Koloa, HI
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