Hi, my name is Nirjala, I am Liam's mum.

Our beautiful little son Liam was born on 1st August 2023, and from the moment we held him, our world changed. He is gentle, joyful, and full of life. He loves the beach, laughter, and cuddles.

To the world, he looks like a perfectly healthy little boy. But behind every smile there is a diagnosis that shatters our hearts.

Liam has Duchenne Muscular Dystrophy (DMD) — a rare, progressive, and ultimately fatal muscle-wasting disease. Over time, he will lose the ability to walk, run, lift his arms, and eventually even breathe on his own.

There is hope: Elevidys Gene Therapy

There is a groundbreaking treatment called Elevidys — a gene therapy that could help slow or even stabilize the progression of DMD. It works by introducing a modified gene into the body to produce a shortened but functional dystrophin protein — something Liam’s body cannot make on its own.

But here's the heartbreaking part:

This treatment comes at an astronomical cost — over 4.5 million AUD— and is not covered under the Australian health system yet. Time is critical. Liam can receive this treatment once he is 4 years old.

Why Are We Asking for Help:

We never imagined we would be asking the world for help. But for Liam, we will do everything possible. Every single donation — no matter the size — brings us closer to hope. Also, if you can't donate please consider sharing Liam's story. One share can reach the person who changes his life.

Your support will help us cover :

If, for any reason, the funds raised cannot be used for Liam’s gene therapy, any remaining funds will be donated to a registered charity supporting Duchenne Muscular Dystrophy research and families.

Thank you for taking time to read our story and for being part of Liam's journey. Together, we can give our little boy a fighting chance at a healthier Future.

With Gratitude and Hope

Liam and Family