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Help Levi Shine Again with a Human Hair Wig

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Levi is my 25-year-old daughter, my best friend, and the heart of our family. Her resilience, strength, and humor inspire everyone around her, and today, I’m reaching out to ask for your help in giving her back a piece of herself.

Levi is one of those rare people who can make anyone—regardless of age, background, or walk of life—feel joy. Her humor is truly the gift that keeps on giving, whether she’s adding her comedian-style commentary to everyday moments or turning mundane questions into laugh-out-loud moments. She’s also a gifted and hardworking artist with a promising future, lighting up every room she walks into.

At 19, Levi discovered a lump in her calf muscle. Her first thought? “Check out my buff calf muscle, Mum!” But after a series of tests, it was confirmed to be desmoid fibromatosis—a rare type of tumor.

Over the years, the tumor grew from 6 to 10 centimeters, invading muscles, nerves, and arteries behind her knee. Last year, it became clear that chemotherapy was necessary to stop its progression.

Levi is now in her fourth month of oral chemotherapy, which is known to cause gradual side effects. She’s been dealing with extreme fatigue, nausea, painful sores on her feet, sensitivity to the sun and sweat, and now visible hair loss. The side effects have been so challenging that Levi had to give up her job—a difficult decision for someone as hardworking and independent as she is. Additionally, Levi is immunocompromised, meaning that any sores or injuries heal very slowly, adding another layer of difficulty to her daily life.

The hair loss, in particular, has been especially hard, as it adds to the challenges she faces daily. And as Levi jokingly puts it, “It feels like life handed me a bingo card of side effects, and I’m one square away from yelling, ‘Bingo!’”

One of the hardest parts of Levi’s journey has been the lack of recognition of her condition as a cancer in Australia. This means she’s excluded from funding for fertility preservation and other chemotherapy-related assistance programs, even though her treatment will likely leave her unable to have children. It’s been disheartening and overwhelming for her at times.

Even though I was prepared to find the funds through whatever means necessary, Levi gave up on the idea. She’s fiercely independent and never asks for anything, but the emotional weight of this loss has been significant for her.

As for Levi’s future, desmoid fibromatosis is a rare and unpredictable condition. Due to the tumor’s size, chemotherapy is unlikely to shrink it, though it has shown success in stopping its growth so far. Her first three-month MRI scan revealed reduced activity, which is promising, but the tumor’s behavior remains uncertain. It could grow despite treatment, and if it does, surgery may be necessary.

Surgical removal would require taking an excess area around the tumor to ensure all traces are gone, as incomplete removal often leads to regrowth. In past cases, amputation was sometimes used, but the tumors still returned. The tumor already limits Levi’s ability to walk long distances, and if it grows further, she may eventually require a wheelchair. On a more hopeful note, it’s also possible—though less likely—that the tumor could shrink or even disappear with time.

Despite all of this, Levi never complains—not once. She’s pursuing her second diploma in graphic design, earning high distinctions, and dreaming of a future where her talent and creativity can shine for the world to see. Even when life throws its worst at her, Levi responds with quick-witted humor and creativity that leave us in awe—and in stitches. Her ability to turn pain into art and challenges into laughter is what makes her truly remarkable.

Levi also has the loving support of her brother, Casey. Despite his demanding job as a cabin crew member, Casey somehow finds time to check in regularly. Whether it’s a quick message or a surprise visit, he always lightens the mood with jokes that only siblings could get away with. Their connection is as unshakable as it is hilarious, and it’s a bond I’m grateful for every day.

A human hair wig costs between $3,500 and $8,000+, with $300 to $600 in annual maintenance. For Levi, this wig isn’t just about hair—it’s about reclaiming her identity and confidence in a world that’s been turned upside down. It’s a source of comfort, a symbol of resilience, and a way to feel like herself again.

Every donation, no matter how small, will help Levi feel like herself again sooner. If you’re unable to donate, sharing this page today could still make a big difference.

Levi’s strength inspires me every day, and I know it will inspire you, too. With your help, we can give her the gift of confidence and comfort—a reminder that she is never alone in this journey.

Thank you so much for your kindness and support—it means everything to us.


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    Organizer

    Natalie Sayers
    Organizer
    Rochedale South, QLD

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