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Help Lev fight stage 4 Neuroblastoma

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On February 2nd, our world was turned upside down when our son, Lev, was suddenly diagnosed with a terrifying condition - Stage 4 Neuroblastoma. Neuroblastoma is a type of cancer most commonly found in young children and is not influenced by the environment or external factors; it is caused by a genetic mutation.

A child who was never ill, always active and cheerful, began complaining of stomach pain, became extremely pale, and constantly wanted to sleep. We went to the ER hoping to get some medication and return home but ended up spending weeks within hospital walls. An ultrasound and CT scan revealed a large mass in Lev's abdomen, right above the left kidney, and the stomach pain turned out to be bleeding from the tumor. We learned that this bleeding is not typical for this type of cancer and if it hadn’t started that day, we probably would never have known about the disease. In one month, we changed hospitals three times, conducted numerous scans, tests, and analyses to confirm the diagnosis. The situation is complicated by the fact that the cancer, in our case, has MYCN gene amplifications and metastasis that also spread to his left jaw, which is common for Neuroblastoma.

Currently, we are under the care of the most professional specialists at one of the best clinics worldwide - Memorial Sloan Kettering. To date, our son Lev has already undergone tumor and bone marrow biopsies, a central line insertion under the skin, and completed his first round of chemotherapy. Unfortunately, during the first few days of chemotherapy, he contracted a respiratory virus that worsened his condition and necessitated a return to the hospital to help his weakened immune system combat it.

There are several more cycles of chemotherapy ahead, followed by surgery, immunotherapy, and radiation. As we all know, the best treatment requires significant resources. We are extremely fortunate to have insurance, but it doesn’t cover everything, and it’s challenging to predict what we might need in the future or how long this journey may take.

We are reaching out for your support during this incredibly challenging time. Any donation, big or small, will help us cover the unforeseen medical expenses and ensure Lev gets the best possible care. We deeply appreciate your kindness, support, and prayers as we navigate this difficult journey. Thank you from the bottom of our hearts.

Sasha, Lera and Lev







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    Organizer

    Oleksandr Zaitsev
    Organizer
    Brooklyn, NY

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