For many of us, a cancer diagnosis results in a deep dive on the subject.

In my deep dive, related to prostate cancer, I came across several folks sharing their stories of reaching NED (no evidence of disease) using "off label" protocols and implementing a metabolic approach.

Otto Heinrich Warburg was awarded the Nobel Prize in 1931 for his research showing that cancer cells primarily generate energy through glycolysis and lactic acid fermentation, even in the presence of oxygen.

This finding, deemed "the warburg effect", means that cancer loves sugar. At a minimum, at cancer diagnosis, you'd think that all patients would be advised to avoid all sugar and things which quickly turn into sugar. But, doctors generally do not provide any recommendations after a diagnosis, instead they setup the next appointment and begin walking the "patient" through the current standard of care which really only has three main approaches: radiation, chemotherapy, and surgery.

Yet, this metabolic approach, sometimes produces what seems to be a cure. This sounds great compared to standard care! And yet, sometimes folks report that none of the protocols they tried did any good. But why?

For many the Joe Tippens story provides a starting point, and the book "How to starve cancer" provides the deep dive.

For myself, I've written software since the 5th grade. In my career path I help companies deploy the infrastructure to let them release applications which scale to millions of users.

As I have deep dived the metabolic approach, and discovered which supplements and drugs (used off label) would best be used to slow my cancer's growth, and which could then be used to slowly reduce the cancer, my brain began generating ideas to make this process easier for people facing this same situation in the future.

Until the metabolic approach becomes the standard, we need a community driven grassroots approach.

I have two projects planned:

[ coopdata.io ]

- a community-driven ongoing clinical trial data website

- also a mobile app interface, so folks can more easily edit their current protocol

When software developers ask another developer a question they often copy their source code to a site like codeshare.io. The developer can then send a link to the code share site to another developer who can then take a look.

My plan is to have something similar for protocols that folks are trying out with their cancer after having deep dived the topic. In forums everywhere someone says something, and in response people ask what protocol they used. Imagine posting 10 times and 10 times someone asks for your protocol. Such a website would make sending a link to the protocol easy.

However, a link to a person's protocol is just the beginning. The plan would be to create a community driven database of protocols. Asking for details of the person male / female / age / weight etc ... type of cancer, prostate, breast, lung, etc additional detail such as the gleason score (along with a date of the score) ... when they started a protocol, what days did they take which supplements, how many times a day, for what dates ... it should be possible to start a new date when the protocol changes and log that protocol as well; and the outcome ... tumor growth stopped, tumors shrank, no change. Also, links to scientific documents explaining the benefits and associated trials.

As data is gathered ai could be used to determine which protocol has been most effective for the most people of a cancer type. The data will be made publicly available to anyone, or any ai agent, while hiding identifying information of the person generous enough to submit their protocol and result. People could use the site to add their protocol, but also just to see what's working for folks with the same cancer type. Perhaps some day, with enough data, folks could enter in their personal information and cancer type and get a customized protocol.

Technically, I already know how to deploy an infrastructure that scales. I already have a server I could immediately deploy which could handle creating user accounts or letting a user login using a gmail account, as well as other standard practices along with the ability to develop in a safe area and safely promote out to production and have the ability to rollback if necessary. I've already written the server in my mind and that is the easy part.

[ a mobile/pc game: off label ]

More interestingly perhaps, I also have an idea for a mobile/pc game which could potentially use the data from the coopdata.io database. Imagine something like a health bar at the bottom, and color above it representing the cancer which has arms that reach out, maybe something like an octopus. The arms would reach up and connect to fuel sources floating above such as glucose, fatty acids, and lactate. It's heath bar would slowly keep progressing. Above there would be other things such as: overweight, stress, drinking alcohol, smoking. And supplements/drugs such as: metformin, ketosis, lovastatin, dipyridamole, berberine, curcumin, dandelion root, cbd oil, etc. Also things which are lacking fda approval for humans but in some studies have been show to "attack" cancer in animals such as fenbendazole and ivermectin. Some items cause the liver to work harder, so above imagine a meter for the liver ... you can add in more supplements/drugs which will effect the liver, maybe you'd need to take a day off a week to give the liver time to recover, also you could add in something to help the liver recover like TUDCA and/or milk thistle.

As the cancer slows down it'll change from an excited expression to less excitement eventually going to sleep once all its fuel sources have been cut off (though it could wake back up if the fuel is restored). Before this you'll see animations as it works to change fuel sources as fuel sources are slowly eliminated by the player.

Basically, by playing the game you'd be working to slow the tumor growth down by blocking the pathways it feeds on, stop doing things which are helping the cancer (lose weight, skip alcohol) and work to reach a point where supplements known to cause apoptosis in cancer would be able to shrink the tumor faster than it is growing.

Cancer is tricky because depending on the source of the cells which became cancer, they tend to prefer different fuel sources, and if you block one such as glucose they can switch to another fuel source. The trick of the metabolic approach is to block all the fuel sources, then add in something to reduce the tumor, while staying within the bounds of keeping the liver safe.

I'm of course not giving medical advice, and I'll make that clear at the website and the mobile app. Many studies show a benefit to chemo with an additional metabolic approach. There is every reason we should be including a metabolic approach with existing treatments, in addition to continued investigation.

Right now I can tell you that as I work with these metabolic approaches I'd love to know something like, "how many people who have applied this protocol, with the same cancer as myself, have reduced their tumors?". Such a database would at least give us a starting point.

And who knows, with a large enough database, and a game which playfully brings folks up to speed on the metabolic approach, maybe some of the folks out there who run clinical trials might start putting money towards this approach and bring the benefits to everyone.

I will implement security features to prevent folks from creating false accounts who might want to create fake protocols to throw off the data.

I'll work to contact experts in the field to help make the mobile app more and more accurate, adjusting numbers to reflect which types of cancers grow faster than others, and adjusting how much drinking alcohol and being overweight helps to contribute to cancer growth, etc... (if you take x supplement to reduce inflammation, and are overweight, do they cancel out?)

If the target goal is reached I'll be able to work on this full time for a year.

I'd like to keep everything ad free. A patreon will be setup to accept ongoing funding by folks who want to contribute. I might put some subtle ads in the mobile game if needed until enough ongoing funds are raised for the project to fund itself.

This project could really change everything, bringing the metabolic approach to the foreground. Just imagine ... figuring out why a protocol works for some but not all, understand which protocols best target which specific cancers. Several people with terminal cancer say they've are now showing NED (no evidence of disease). The metabolic approach is what people do when the traditional approach fails. With enough data, the metabolic approach will become the first approach.

To show that I do have the ability to create these things, until I have something started, here are some other projects I am working on https://aiki.io .