Kiki is our niece, and she is 3 years old. She is a very medically complex child, living with HIE (hypoxic-ischemic encephalopathy), quadriplegic cerebral palsy, seizures, temperature instability, no suck, swallow or gag reflex, GERD, immune deficiency, tracheomalacia, laryngomalacia, deafness and hearing loss, CVI (cerebral cortical visual impairment), no cry, sensory impairment, respiratory issues, and precocious puberty. Despite all these challenges, Kiki is a fighter. From the moment I met her, she grabbed my thumb and looked at me with eyes that seemed to say, 'Thank you for being here with me.' She came from an environment no child should ever have to endure, yet she continues to show incredible strength and resilience. In her short three years, she has faced more battles than most people will in a lifetime. She is beautiful, loves to cuddle, and has a special presence that makes everyone around her feel her purpose. Kiki deserves love, dignity, and every opportunity we can give her. As her advocating parents, we are committed to doing everything possible to help her thrive.

We are now hoping to give Kiki a chance at stem cell therapy. While it’s not a cure, this treatment has shown remarkable promise for children with similar conditions—improving muscle tone, vision, and even communication abilities. Unfortunately, the treatment is not covered by insurance, and we must travel out of the country to access it. The cost is significant, but we believe that everything is worth a try when you’re fighting to help your child. The funds we raise will go toward the treatment, travel expenses, and intensive therapy to support Kiki’s recovery and development.

Thank you for taking the time to read Kiki’s story. If you’re able to donate, please know that every bit counts and we cannot do this without your help. Being able to provide this treatment would mean the world to us. Thank you again for your support, help, and for sharing Kiki’s story.