- B
- J
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Hello everyone,
as many of you know my daughter Destiny gave birth to my granddaughter Kiera Scottie Villalobos . She was born with Severe Aortic Stenosis with a failed unworking left ventricle.
Basically her veins are so small she needs them surgically repaired as a bandaid to keep her heart working but her left ventricle will never be able to be repaired or heal so she’ll need a heart transplant down the line.
The surgeon today basically said if we move along with surgery she’ll be put on the transplant list as long as she qualifies and doesn’t have any lung issues.
They do provide us with room boarding housing wise but they don’t help with essentials nor food or coarse, since We have been here spent over $600 on things they needed an I needed and food as well an that’s us eating the very minimal of once a day sometimes twice.
Hoping we can raise a little bit so that can be comfortable while being here
This is the info down below of her latest update as anything can change at any time due to the severity of her heart condition.
She was more active last night due to her fentanyl being decreased earlier in the day so she was moving a lot and spiking her heart rate and temp but she’s been able to calm down with other less hard drug sedation options so she’s doing good right now.
A heart surgeon came in right now to check on her and he said she’s doing better day by day vitals wise but surgery won’t be tomorrow or even the next day, they want to give her a little more time since she started TPN and they want to create a window of time, hopefully this week, where she has the best vitals and stability possible so in surgery she doesn’t go into shock etc.
And they’ll go over more in depth details tomorrow about what they’re thinking is her best option surgery wise.



