Help me restore my vision

Two months ago, I didn’t even think restoration of my vision was even a possibility. For those who don’t know, I went blind at the age of four from an allergic reaction to Amoxicillin, a commonly used antibiotic. I was diagnosed with Stevens-Johnson Syndrome, a severe autoimmune disorder, that caused my body to literally attack itself and left my eyes, primarily my corneas,  seriously scarred and, according to the doctors at the time, irreparably damaged. When I was a child, I had many, many surgeries attempting to repair my eyes with no success. My Stevens-Johnson Syndrome kept attacking the work that was done, and we were told that a cornea transplant was out of the question as a result. After the emotional trauma from these childhood surgeries, I never felt compelled to go back down that road, until recently. Two months ago, after putting Grady down for a nap, and finding myself with a rare few hours to spare, I randomly decided to You-Tube “Stevens-Johnson Syndrome and cornea transplants.” To my shock, I found four stories of individuals who not only had my disease and had been blind for nearly the same amount of time as I have but also had perfect restoration of visionl due to cornea transplants. I even saw a video about one guy who got his driver’s license after hreceiving a  cornea transplant. Of course, I had to find out more! On a referral from my primary physician, I booked an appointment with a local ophthalmologist. I fully expected to be sent to several different specialist before finding someone that was not only knowledgeable about my rare disease let alone able to perform the surgery I needed. After assessing my eyes, he casually asked me when I would like to schedule the surgery. As I sat there in shock with countless emotions running through me, all I could think to say was “Excuse me?” It turned out that Dr. Tawansy had worked with many individuals with my disease while in Boston and felt that I had a shot at a cornea transplant due to the recent advances in technology. Wow, talk about a god send. He proceeded to tell me that, at the very least, I could regain remedial vision, which means that I could have enough functional vision to walk around without the use of a guide dog. We began the process on September 25th receiving my first surgery  on my right eye, removing scar tissue and placing an amniotic membrane over it to help heal in  preparation  for a cornea transplant. Just from this surgery alone, I have experienced an improvement in light perception. Over the past month, I have had daily eye treatments in order to maintain a good hosting environment for the cornea. Now, the surgeon feels I am ready for the cornea transplant. The plan is to have the surgery sometime at the end of November. Unfortunately, I discovered  that my insurance will pay for the cost of the surgery but does not cover the cost of the cornea itself. I truly feel that God  has had his guiding hand on me throughout this entire process, and I am so excited for whatever plan he has in-store for me. Your prayers and your donations will be an incredible blessing for me and my family during this exciting time.

Donations

  • Susannah K 
    • $5 
    • 27 mos
  • Jackie Dunbar 
    • $100 
    • 31 mos
  • Bill & Allee McAlmond  
    • $50 
    • 32 mos
  • Anonymous 
    • $200 
    • 32 mos
  • Anonymous 
    • $100 
    • 32 mos
See all

Organizer

Kayla Reed 
Organizer
Thousand Oaks, CA
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