Help Karen Fight ALS

Karen (known to many as the Quad Queen in my Vegas blog), the love of my life, has been diagnosed with ALS (aka Lou Gehrig's Disease, or MND).

ALS is a relentless terminal illness that kills the motor neurons that control muscle movement. It has already ended Karen's ability to walk, the use of her right arm and hand, and greatly limited the use of her left.

I'm Karen's partner, Eric (aka Royal Flusher aka Top Dog Bossfan). We've been together 43 years and in 2021, we had it all. We'd worked hard all our lives. We saved. We retired. We bought an inexpensive mobile home in Florida. And, we enjoyed our first snowbird winter in paradise.

In March 2022, the bottom fell out. Karen tried to sign her name one day - and found she couldn't hold the pen.

Our lives have changed completely, and the horizon that once seemed so bright and sunny is now murky and uncertain.

Karen's life has always centered around her physical being, and athletic pursuits like gymnastics, and bodybuilding. She loved to grab a shovel and take on a big landscaping project.

What makes it bearable is Karen's incredible, positive attitude.

Somehow, she's accepted the situation, and lives for the day, finding happiness wherever it may lie. She's upbeat, and generally in a good mood.

However, Karen is daunted by the idea of spending winter in the cold, dark North. She is hopeful that we can return to our retirement snowbird dream this winter. I'm committed to making that happen for her.

But we need help. Your help.

ALS, like rust, never sleeps. As Karen's abilities have diminished, we've scrambled to keep up. We've purchased all kinds of accommodative devices that we never thought we’d need. The expenses have added up quickly.

Ontario funds 2 hours of Personal Service Worker (PSW also known as a Home Health Aide) time per day and 4 hours of caregiver respite time per week. It’s not enough. Down south, we’ll pay out of pocket for every hour of PSW care needed.

My days are long as there’s not much Karen can do for herself anymore. I’m her hands, arms, and legs now. In some ways, it's the best job in the world, because we are still together, and I am able to serve. But it’s demanding, and it's tiring.

And as Karen's condition worsens, she will need additional specialized support. As much as I want to, I can't do it all.

With your help, Karen can get the most out of every day, and have the winter she deserves, one full of warmth, sunshine, and love.

  • A Four-of-a-kind Quad Queen donation of $60 provides two hours of PSW support.
  • A Four Aces donation of $180 funds a 6-hour day of PSW support.
  • A Four Aces with Kicker donation of $1260 covers a full week of PSW support.
  • A Jackpot donation of $2500 will get Karen new wider doors for access in the house and out onto the deck.
  • A Major Jackpot donation of $5000 will pay for new wheel-chair accessible flooring to replace existing carpeting.
  • A Royal Flush donation of $13,142 covers an Access Unlimited Multi-Lift system to allow Karen to get into and out of the car, so she can continue to experience the outside world, and to move from her wheelchair to wherever she wants to sit in the house.

We understand that you have your own budget to keep in mind. Of course, any amount, large or small, is more than welcome and deeply appreciated. Thank you for your support!

Donations (193)

See top
  • Catherine Clute
    • $103 
    • 1 d
  • Anonymous
    • $40 
    • 2 d
  • Anonymous
    • $20 
    • 2 d
  • Anonymous
    • $200 
    • 3 d
  • Cynthia Frakes
    • $100 
    • 3 d
See all

Fundraising team (2)

Eric B. (Royal Flusher)
Raised $11,530 from 92 donations
Drive, ON
Barbara Divana Bell
Team member
Raised $815 from 8 donations
This team raised $10,750 from 93 other donations.

Your easy, powerful, and trusted home for help

  • Easy

    Donate quickly and easily.

  • Powerful

    Send help right to the people and causes you care about.

  • Trusted

    Your donation is protected by the  GoFundMe Giving Guarantee.