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Imagine your child going unresponsive so often that she needs a trach and ventilator just to survive. Imagine watching her fight to breathe every day, never knowing if this Christmas will be her last. That is the reality for Madison and our family — and she is now on hospice. We just don’t know how many more Christmases we will have with her.”
“We are a family of seven. Our three oldest boys — Landon, Mason, and Sawyer — carry responsibilities no child should ever know. They have grown up in hospital rooms and waiting rooms, learning to hold courage and love in the face of fear. They’ve done homework on sterile floors, celebrated birthdays surrounded by machines instead of family, and fallen asleep wondering if we would all make it home safely that night. They have witnessed their little sister struggle for every breath. They’ve watched us make impossible decisions, seen tears we tried to hide, and felt the weight of a life no child should ever have to carry. And yet, they continue to show up with kindness, patience, and bravery. Their love is fierce. Their resilience is quiet but unshakable. They teach us every day what it means to endure and to hope.”
Hudson, our 4-year-old warrior, has endured multiple heart surgeries, lives with a pacemaker, and will need a heart transplant in the future. His courage is beyond what most adults could bear, yet he keeps dreaming, loving, and protecting his little sister from worry.
And then there’s Madison — our tiniest fighter. She was born at just 26 weeks, three hours from home, and spent four long months in the NICU at UVA. Now, 2.5 years later, after more than ten life-flights and countless moments where we came terrifyingly close to losing her, we made the decision for a trach and ventilator. She lives with a rare neuromuscular condition, and we’re still working with specialists at the NIH, searching for answers, hoping for anything that can give her a better chance. Every single day is a battle: balancing machines, traveling to appointment after appointment, managing crises most people couldn’t imagine, and bracing for emergencies we pray never come. She is the definition of resilience — tiny, fragile, but mighty in every way that matters.
Our home is full of love — but it isn’t set up to meet Madison’s medical needs. Her machines are crammed into corners. Her brothers can’t sit comfortably with her. But this Christmas, we have a chance to change that.” “With your support, we can create a safe, organized bedroom for Madison. A space where nurses can care for her efficiently, where her brothers can sit with her, read, play, and make memories, and where Madison can rest peacefully, surrounded by love instead of hospital walls.
We want to give her the Christmas she deserves — warmth, joy, and moments wrapped in love with her family… moments we may never get again. We simply don’t know how much time we have left with our sweet girl, and every moment and memories matters. Every donation will go directly toward Madison and creating magical moments for her and her brothers this holiday season and the months ahead.
Our family has been carrying an enormous financial and emotional weight on our own for so long. Your support can lift some of that burden and give us the gift we’re praying for: the ability to focus on what matters most — time, comfort, and memories with Madison. Every donation brings us one step closer to giving our children a Christmas filled with peace and joy, and giving Madison a holiday she truly deserves.
Thank you from the bottom of my heart for considering our family this holiday season.
Merry Christmas.
“We are a family of seven. Our three oldest boys — Landon, Mason, and Sawyer — carry responsibilities no child should ever know. They have grown up in hospital rooms and waiting rooms, learning to hold courage and love in the face of fear. They’ve done homework on sterile floors, celebrated birthdays surrounded by machines instead of family, and fallen asleep wondering if we would all make it home safely that night. They have witnessed their little sister struggle for every breath. They’ve watched us make impossible decisions, seen tears we tried to hide, and felt the weight of a life no child should ever have to carry. And yet, they continue to show up with kindness, patience, and bravery. Their love is fierce. Their resilience is quiet but unshakable. They teach us every day what it means to endure and to hope.”
Hudson, our 4-year-old warrior, has endured multiple heart surgeries, lives with a pacemaker, and will need a heart transplant in the future. His courage is beyond what most adults could bear, yet he keeps dreaming, loving, and protecting his little sister from worry.
And then there’s Madison — our tiniest fighter. She was born at just 26 weeks, three hours from home, and spent four long months in the NICU at UVA. Now, 2.5 years later, after more than ten life-flights and countless moments where we came terrifyingly close to losing her, we made the decision for a trach and ventilator. She lives with a rare neuromuscular condition, and we’re still working with specialists at the NIH, searching for answers, hoping for anything that can give her a better chance. Every single day is a battle: balancing machines, traveling to appointment after appointment, managing crises most people couldn’t imagine, and bracing for emergencies we pray never come. She is the definition of resilience — tiny, fragile, but mighty in every way that matters.
Our home is full of love — but it isn’t set up to meet Madison’s medical needs. Her machines are crammed into corners. Her brothers can’t sit comfortably with her. But this Christmas, we have a chance to change that.” “With your support, we can create a safe, organized bedroom for Madison. A space where nurses can care for her efficiently, where her brothers can sit with her, read, play, and make memories, and where Madison can rest peacefully, surrounded by love instead of hospital walls.
We want to give her the Christmas she deserves — warmth, joy, and moments wrapped in love with her family… moments we may never get again. We simply don’t know how much time we have left with our sweet girl, and every moment and memories matters. Every donation will go directly toward Madison and creating magical moments for her and her brothers this holiday season and the months ahead.
Our family has been carrying an enormous financial and emotional weight on our own for so long. Your support can lift some of that burden and give us the gift we’re praying for: the ability to focus on what matters most — time, comfort, and memories with Madison. Every donation brings us one step closer to giving our children a Christmas filled with peace and joy, and giving Madison a holiday she truly deserves.
Thank you from the bottom of my heart for considering our family this holiday season.
Merry Christmas.