Our daughter, Kailani, was born with Jacobsen Syndrome (11q deletion), an extremely rare genetic disorder affecting approximately 1 in 100,000 people. Because her condition is so rare, access to specialists who truly understand 11q is incredibly important. Every two years, our family attends the 11q Conference, where leading medical experts, researchers, and families affected by 11q come together. This conference provides invaluable medical knowledge that helps us advocate for Kailani's care and share important information with her healthcare team of 16 specialists. Just as important, the conference connects Kailani with other children and young adults living with 11q. For families facing a rare diagnosis, the support, understanding, and sense of community are truly priceless. This year, the costs of airfare, lodging, conference registration, and travel expenses are more than our family can manage alone. We are hoping to raise funds that help cover these costs and make this important trip possible. Whether you donate, share our fundraiser, or send words of encouragement to Kailani, your support means the world to us. Thank you for helping Kailani access the expertise, resources, and community that make such a difference in her life (and ours).