Help Kaashvi & Arohvi Fight Spinal Muscular Atrophy (SMA)

Help the sisters Kaashvi & Arohvi Fight a Rare Genetic Disease

My name is Rohit, and I’m reaching out as a fundraiser on behalf of a devastated family—Keshav Kundu and Rekha Kumari (my friend cum relative), the loving parents of two beautiful daughters, Kaashvi and Arohvi. Kaashvi, now 2.8 years old, has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a progressive genetic disorder that weakens muscles and limits movement. The family was already battling this painful reality when an even more heartbreaking blow struck—on Friday, 25th July 2025, their younger daughter Arohvi, just 2 months old, was diagnosed with SMA Type 1, the most severe and fatal form of the disease.

Arohvi must receive the one-time gene therapy, Zolgensma, as early as possible, or the disease will continue to progress rapidly. Without treatment, most children with SMA Type 1 don’t survive beyond the age of 2. The cost of this therapy is a staggering $1.7 million per child.

This diagnosis has left the family in deep emotional and financial distress. What should have been a joyful time with their newborn has turned into a race to save not one, but both daughters. Keshav and Rekha are fighting with everything they have, but this battle cannot be won alone.

Please help us save Kaashvi and Arohvi. Your donation, no matter the size, can bring them closer to a future filled with life, movement, and hope.

— Rohit