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My name is Paola and im Juliet’s mom. Juliet was born September 20,2016. During my pregnancy Juliet’s bones were measuring shorter and they were bowed. The day she was born they immediately rushed her to the NICU due to her not breathing. Later on that day a NICU nurse came to talk to my husband and I and let us know that Juliet had 67 broken bones and they were all in different healing stages and they did not have a reason as to why but if they knew something they would let us know. My husband and I weren’t allowed to hold Juliet until she was about a week old due to her broken bones and not wanting us to cause more. After Juliet being in the NICU for 3 weeks they asked us if we knew what Osteogenesis Imperfecta was and I didn’t even know how to say it so at that point the Dr. told us that she suspected that, that was Juliet’s condition. She contacted a Dr. that specializes in OI and a week later they diagnosed her with type 2 and they let us know that she had already made it 3 weeks and that we don’t know how much longer she was going to live so it was best to take her home to pass away. After 7 weeks we received her genetics report and it turns out she has OI type 8. It’s a really rare type that was just discovered not too long ago. As of today we go along with what Juliet’s body tells us. She will be 3 this year and she has had over 200 fractures in her body. The dr recently decided that Juliet is ready for rodding surgery. First we will start with femurs then we will do Tibias. Hopefully one day Juliet will walk. As you all know anything that involves drs is a lot of money and as much and Juliet’s dad and i want to cover all the expenses it is impossible. The money raised will go towards Juliet’s surgery and wheelchair. We would really appreciate the help and thank you so much ❤️

