Help Jude live his dream
Donation protected
Hi everyone, I’m fundraising for jude who has a rare muscle disease called nemaline rod myopathy to go on holiday to swim with dolphins( his dream) health professionals have tried to put a request in for make a wish and other charities but they are all back logged and not expecting anymore applications.
Jude has already been in two comas because of his condition, He has various complications with his lungs and heart I’m just so scared if I leave it any longer he might be at a place where he won’t appreciate it as he’ll find it to much of a struggle and be in to much pain , he is now 6 years old and already im seeing his mobility decline .
Im a single parent of three who isn’t working for the fact jude only goes to school for a few hours so it’s really very difficult to afford a major holiday like this , life is precious and so is he , professionals have said he’s going to have a shorter life than most because he’s been needing a bipap since birth . Please keep sharing . Thank you
Michelle & family
Jude has already been in two comas because of his condition, He has various complications with his lungs and heart I’m just so scared if I leave it any longer he might be at a place where he won’t appreciate it as he’ll find it to much of a struggle and be in to much pain , he is now 6 years old and already im seeing his mobility decline .
Im a single parent of three who isn’t working for the fact jude only goes to school for a few hours so it’s really very difficult to afford a major holiday like this , life is precious and so is he , professionals have said he’s going to have a shorter life than most because he’s been needing a bipap since birth . Please keep sharing . Thank you
Michelle & family
Organizer
Michelle Jones
Organizer