Help JT Beat TPI Deficiency

$51,618 of $150,000 goal

Raised by 520 people in 3 months
On March 5th 2019, JT was diagnosed with Triosephosphate Isomerase Deficiency (TPI). TPI is a genetic multisystem disorder that is life-threatening, complications such as respiratory and heart failure can occur during childhood.  In addition to the TPI, JT has Hemolytic Anemia which is premature destruction of red blood cells in your body which is why he will need blood transfusions.  As the deadly disease progresses, sadly other symptoms include neurological damage that can lead to paralysis, and intellectual disability occurs along with tremors and dystonia. 

JT is currently being treated at Stanford Children's Hospital. Since there are less than 60 cases ever reported there is very little information found in medical literature. TPI Deficiency is so rare that it's possible JT may be the only living person in the world that has it. At this time, his team of Doctors do not know what treatment can help or cure him. Our hearts broke when they said JT's estimated lifespan is probably 2 to 5 years. 

From the bottom of hearts, we are asking for donations that will help fund medical research about this disease and assist with JT's medical expenses and treatments. We have already started the process of setting up a Non-Profit to help fund the research. Unfortunately, the application process takes up to 6 months as it has to go through State and Federal approvals. Any support you can offer for this campaign is greatly appreciated!! 

JT will be 6 months young tomorrow. His spirit is loving and laid back. He has this contagious smile that will melt your heart and his favorite foods are bananas & sweet potatoes. We think he's got a tough personality too because he hardly fussed when his two bottom teeth came in last month. He's also mastered rolling over, throwing things on the floor, and is learning how to sit up now.  

If you'd like to follow JT's progress, his website ( www.savejt.com) will be up and running in a few days. Until then, from our family to yours, thank you very much for the love and support. 
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$51,618 of $150,000 goal

Raised by 520 people in 3 months
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