Help Journey Thrive with Russell Silver Syndrome

Hello everyone! We are Dustin and Amber Howland. Our 5 year old daughter Journey has recently been diagnosed with Plag 1- related Russell Silver Syndrome type 4. This is a very rare condition that affects growth, weight and feeding difficulties. There are only a handful of Plag 1 cases in the US. Journey has always been small and had feeding issues but after various testing, genetics testing was done. The results showed this rare diagnosis. There will be many appointments/growth hormones/research all across the country in Journeys lifetime. New York will be our first stop soon. Any donations would be greatly appreciated to help out with all expenses for our daughter’s journey. Thank you for all your help.