Joey is my son, and he has already shown incredible strength as a survivor of Langerhans Cell Histiocytosis (LCH), a rare disease, and a bone marrow transplant after all other treatments failed. His transplant is even less common for LCH, making his journey especially unique and challenging. Because LCH is so rare, our local doctors simply do not have the experience necessary to establish the best long-term plan for Joey’s health and future.

City of Hope was Joey’s treating hospital and, in 2010, it was the only hospital willing to take him for a bone marrow transplant so that he had the best chance of survival. Now, as Joey grows into adulthood, he faces a new challenge: making sure he receives the specialized care he needs to thrive for years to come. Joey’s doctors have recommended that he visit the survivor clinic at City of Hope, which is over 400 miles away from our home. This clinic is essential for his ongoing health, as it will provide him with comprehensive scans, tests, and evaluations to create a long-term care plan tailored to his unique needs.

Getting Joey to City of Hope is not easy. The costs of flights, a rental car, and lodging quickly add up, and these expenses are not covered by insurance. We want to make sure Joey has every opportunity to receive the best care possible, but we can’t do it alone. Your support will help us cover the travel and accommodation costs so Joey can get the medical attention he needs to stay healthy and strong.

Thank you for supporting Joey’s long-term survival from LCH and for helping ensure he receives the care he needs. Every donation, share, and kind word means the world to our family. With your help, we can give Joey the best chance at a healthy, hopeful future.