Help Jessi In Life
Hello
My name is Jonathan and I'm raising money for my two week old baby daughter who has been diagnosed with Kippel Trelauney Syndrome. She has a Lymphangiomatous mass on her left chest wall and left arm. she has been admitted for futher work-up and surgical management. So far she has had X-Rays, Ultrasounds and a MRI. Serial bloods were taken in first 48hrs for testing. MRI scan of left anterior chest and left arm showing Macrocystic Lymphatic Malformation. Jessi will be having multiple follow ups with the Vascular Malformation Clinic for MRI scans and she will be needing years of treatment at the Mater Children's Hospital to help stop the Lymphangiomatous mass.
At the time this was written there is only 9 babies in Queensland, Australia with is very rare condition. Jessi is the 8th baby to be diagnosed with this condition 1 week and 3days ago.
All the baby clothes we had didn't fit and we need to get custom made clothes for her. Any money raised will help us with on going costs, hospital visits and to help us get the best care for Jessi Campbell.
