Help Jessi Get the Diagnosis She Needs
Donation protected
As most of our family and friends know my daughter, Jessi, has always suffered from health issues. In recent years her health issues have been becoming increasingly worse.
- She has suffered from pain in her back and every single joint on a daily basis since she was very young.
- She has had multiple injuries that we could not explain how or why they were happening.
- She's been in and out of knee braces, shoulder slings, wrist braces and ankle braces for many years!
- She's been through many medical procedures and tests to try to find answers and or to treat symptoms. Yet everything comes back "normal".
- She must go every 2 weeks to have IV treatments to keep her hydrated and feeling well.
- She has to be adjusted by a chiropractor once or twice (sometime more) to relieve back pain just for a day of relief and to help her make it through her work day.
- She has stomach issues that sometimes prevent her from being able to eat for days or even weeks at a time.
- She's had knee surgery and is still having issues requiring Physical Therapy every week.
- She suffers from POTS (Postural Orthostatic Tachycardia Syndrome) which is getting increasingly worse each year. This causes her to pass out or feel very close to doing so when she moves from a seated to a standing position or just gets dehydrated.
About 2 years ago, a doctor she was working with, told her to look into something called Ehler's Danlos Syndrome. Upon researching this, we believe this is what she has.
Finally, a light at the end of the tunnel!
Unfortunately, we have not been able to find a doctor in Las Vegas who knows enough about it to diagnose her and treat her.
There was one specialist in Henderson who could, but she stopped taking new EDS patients literally two months before we ever heard of it.
We found a team of specialists in Arizona, who specialize in EDS, POTS and Gastroparesis.
But here is the thing, they don't take insurance. With all of the medical expenses already going out for her weekly treatments and the cost of living being challenging, we haven't been able to afford to schedule her with them.
In our Bible study group the subject of her health issues came up and some sweet. generous angels banded together to pay to help her get to a specialist for the cost of the visit. PRAISE THE LORD! We are so grateful!
However, once Jessi made arrangements for the visit and filled out the extensive paperwork, she was emailed a couple weeks later saying she has to pay over $2000 for the cost of the testing to be done during her visit.
- $850 - Autonomic Testing with TransCranial Doppler
- $850 - Craniocervical Instability Evaluation
- $365 - EMG/NCV (A test of nerves and muscles
- ?? (Cost not given) - PT Evaluation
- More labs, cost not given
- We were surprised by this notification and we don't have the financial ability to pay for this!
So, we are reaching out, in hopes that there are some more generous angels out there willing or able to help her/us out. Would you consider donating to help her finally get a diagnosis and a possible treatment plan to help her feel better.
Jessi's appointment is scheduled for May 5 and 6, 2025. She has to pay for the testing right after she meets with the doctor.
We are asking for a little more than the cost of unspecified testing costs as well as some to cover travel and two nights of lodging costs as well because the facility is in Arizona.
Organizer
Crystal Miller
Organizer
Las Vegas, NV