Help Jeremiah start his Apert Treatment

Jeremiah is our first baby and was born on August 19th, 2022 by c-section where he was only then diagnosed with Apert Syndrome. Apert Syndrome, also known as Acrocephalosyndactyly is a very rare genetic disorder which occurs in 1 out of 65,000 to 88,000 births. It causes all toes and fingers to be fused and a fused skull that does not grow normally with wide set eyes, all apparent from birth. He also has an abnormal nasal passage which causes him to breathe through his mouth.

The day he turned 1 month old, he was admitted in PICU due to pneumonia from aspirating on a sedation given to him before a CT scan. Jeremiah proved his will to survive on several occasions during this month long hospital stay when he fought the hardest for his life, even reaching 9% oxygen saturation when he stopped breathing.

We are from the Pacific Island Nation of Fiji and just received the best news that Jeremiah has been accepted for treatment in Ohio at a Children’s specialist hospital that treats children with Aperts. We are trying to prepare for his first craniofacial surgery and are in need of funds to help with this. It will be the first of many surgeries that he will need at different stages of his life.

Apert babies need this surgery before 18 months to release pressure on their brains and allow the brain to grow and develop normally and to prevent seizures.

We humbly ask those who have the means to donate to please help us raise this money for travelling, accommodation and any other added medical expenses that may be incurred for this trip to help Jeremiah get on the road to living the best life that he can with Apert Syndrome.

Thank you for any kind donations you wish to give towards this cause and for sharing this link.

Please keep him in your prayers.

With love and gratitude,

Felicia, Mosese & baby Jeremiah.