Help Jazlyn Heal and Dance Again

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$6,413 raised of $25K

Help Jazlyn Heal and Dance Again

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Hi, my name is Amy, and my daughter, Jazlyn Robinson, is 22 years old. Many of you know her online as @jazlynrobinson, a dancer, singer, and creator whose energy and kindness have always drawn people in. In March 2025 she moved from Arizona to Los Angeles to begin her adult life and chase the dream she’d worked toward for years. She was excited, hopeful, and ready to build a future doing what she loves.

She even brought her little bunny, Bun, who’s been her companion for years and often appeared in her videos. Together they packed up her room, full of plans and excitement for this new chapter.

Only thirty days after moving, everything changed. Out of nowhere, Jazlyn became suddenly and severely ill. Something triggered an inflammatory reaction in her nervous system, and in a matter of weeks her life turned upside down. Over the coming months she lost her ability to speak, slipped into periods of catatonia, and became unable to care for herself. Her memory and sense of self started to fade, and today she is unable to communicate and requires full-time care. Losing the life she had just begun to build, while also being separated from her precious bunny, has been heartbreaking for all of us.

When this first began, we went from hospital to hospital searching for help. Every place gave us a different answer. Jazlyn was misdiagnosed repeatedly, treated with the wrong medications, and sent home with no improvement. Each turn brought new tests, new hopes, and new heartbreak. It wasn’t until months later that we finally learned what was happening: Jazlyn is suffering from a severe form of Autoimmune Encephalitis, an illness where the immune system attacks the brain, causing inflammation in areas responsible for movement, speech, motivation, emotion, and cognition. When those areas become inflamed, the brain simply cannot function normally. Symptoms can include loss of speech, cognitive decline, memory issues, catatonia, seizures, fear, confusion, and neurological shutdown. Jazlyn is experiencing many of these.

Over these past months, one of the hardest parts has been accessing proper medical care. Adult autoimmune encephalitis is extremely complex, many cases are seronegative, and many patients go 1–3 years without proper diagnosis. Some adult AE patients see 12 or more doctors before they finally get help. Even when Jazlyn was hospitalized, the focus was often placed on psychiatric explanations instead of the underlying neurological disease. Because of this, the treatments she truly needs were never offered. The sickest patients are often disregarded simply because their cases are so complex.

We continue to do everything possible to help Jazlyn heal with the access we have here. She’s had multiple hospital stays and ongoing integrative care. We continue to meet with specialists and will continue to fight for the therapies she truly needs but that are not easily available to her. She needs daily IV treatments, infection control, and a team of doctors who understand this illness and how to treat it in the correct order.

Before this illness, Jazlyn was known for her humor, her gentle spirit, and the calm energy she brought to social media. Her TikTok and other platforms became safe spaces for people who needed encouragement or a reason to smile. We often watch her old dance videos and listen to her singing with hope in our hearts that one day we’ll see her light shine that way again. We look forward to the day we get to hear her voice and watch her dance again.

Your support will help give Jazlyn her life back. It will fund the therapies that can restore her ability to move, speak, and create again. Every donation helps, whether large or small, it brings her one step closer to recovery. If you can’t contribute financially, simply sharing this page or keeping her in your thoughts and prayers means the world to us.

Where We Are Now 3/19/2026

After 277 days of fighting to get Jazlyn the care she needed, she has finally begun treatment.

She has completed her first round of IVIG, a therapy made from donated antibodies that helps regulate the immune system and reduce inflammation in the brain. We have seen small signs of improvement, but she is still very sick.

Jaz has now also started plasmapheresis (plasma exchange), which is a critical treatment that works by removing the harmful antibodies attacking her brain.

She has a permcath placed in her chest so these treatments can be done safely and consistently.

She will now undergo:

Plasmapheresis every other day for 10 days
Repeated monthly cycles of treatment
Monthly IVIG infusions, likely for up to 1–2 years

This is not a quick fix.
This is an ongoing and intensive process, and it will take time.

Jazlyn is still unable to care for herself and needs help with even the most basic daily functions. She is not yet herself, but we are holding onto hope as treatment continues.

Why We Are Raising Funds

Jazlyn is currently unable to work, and her care requires full-time support.

Even with insurance, there are still significant out-of-pocket medical expenses, deductibles, and aspects of her care that are not fully covered.

This support helps us continue her treatment and gives us the ability to make decisions based on what she needs, without delay.

It also helps carry her through this time, including any travel, specialized care, or additional support needed as we continue moving forward with her treatment.

Every dollar will go toward Jazlyn’s care and helping her get through this.

Our family is deeply grateful for the kindness and encouragement we’ve already received. We believe in healing. We believe in miracles. And we believe Jazlyn will come back from this.

With love and gratitude,
Amy

We’re also sharing Jazlyn’s story to raise awareness about PANS/PANDAS, a childhood form of encephalitis, and about seronegative Autoimmune Encephalitis. I had never heard of these conditions until Jazlyn’s diagnosis, and the horror of what has followed has only broken my heart for the thousands of children and adults suffering this terrible disease. These patients are often misunderstood, misdiagnosed, or dismissed, leaving families to struggle for care and understanding. By supporting Jazlyn, you’re also helping shine a light on a community of patients and parents who are fighting for recognition, research, and access to life-saving treatment. For adults like Jazlyn, awareness can truly change everything.

When Jazlyn gets through this, and I believe with all my heart that she will, she will be a strong advocate for other children and adults who are walking the same difficult path. I look forward to the day she can tell her story of courage and resilience through a system that once stood against her.

Organizer and beneficiary

Amy Robinson
Organizer
Gilbert, AZ
Jazlyn Robinson
Beneficiary
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