Help Jaxon on His Journey to Healing and Independence

Hi, everyone. We want to share the story of our amazing nephew, Jaxon. He’s one of the strongest kids we know, and his journey so far has been nothing short of extraordinary. Born prematurely at just 29 weeks with gastroschisis, Jaxon has faced more challenges in his young life than most of us can imagine.

From his very first moments, he has undergone countless surgeries, battled through severe medical conditions, and shown a resilience that inspires everyone around him. Watching him fight through these challenges has been both heartbreaking and awe-inspiring, and we are committed to doing everything we can to support him and his parents in giving him the best possible chance at a bright future.

Jaxon’s story is one of perseverance and hope. Let us tell you more about his journey and why we need your help.

Jaxon's Story:

Jaxon was born prematurely at just 29 weeks with gastroschisis, a rare condition where his intestines developed outside of his body. From the moment he entered the world, he has faced incredible challenges, enduring multiple surgeries, including the placement of a silo immediately after birth, repairs for intestinal blockages, and treatments for NEC (a severe intestinal infection). During his initial NICU stay of 191 days, Jaxon underwent 13 surgeries and demonstrated a resilience that continues to inspire everyone around him.

Following his discharge, Jaxon faced more hurdles. He developed mastoiditis from a severe ear infection, necessitating a PICU stay. Over the years, he has endured therapy after therapy and countless medical interventions, including Botox treatments, MRI scans, and evaluations that ultimately diagnosed him with a severe form of spastic quadriplegic cerebral palsy caused by periventricular leukomalacia (PVL).

In September 2023, Jaxon underwent life-changing selective dorsal rhizotomy (SDR) surgery to improve his mobility. The progress he made was nothing short of miraculous. For the first time, he was able to sit unassisted, use a walker, transfer independently, and even ride a tricycle. It was a moment of pure joy and hope for our family.

However, the journey is far from over. Recently, Jaxon has experienced significant regression in strength and mobility, to the point where he can barely bear weight. His doctors are deeply concerned and have recommended an intensive rehabilitation program, requiring Jaxon and his mom, Chelsea, to return to Dallas for inpatient therapy.

This process is emotionally and financially overwhelming. The cost of ongoing therapy, routine follow-ups with neurologists, neurosurgeons, and neuropsychologists, as well as travel and living expenses while staying in Dallas, is immense. Jaxon’s only outings during these visits are to the hospital gift shop and cafeteria.

Despite everything, Jaxon continues to smile, laugh, and fight through every challenge with incredible strength. We are determined to give him every opportunity to reach his fullest potential and live a life filled with as much independence and joy as possible.

We humbly ask for your support—whether it’s through donations, prayers, or simply sharing Jaxon’s story. Every contribution will go directly toward his medical care, therapy, and the resources he needs to thrive.

Thank you for taking the time to read about Jaxon and for being a part of his journey. Your kindness and generosity mean the world to us.

With love and gratitude,

Victor and Victoria