Jason is 49 and has lived with what he thought was Early Onset Parkinson’s for the past 5 years.
A few weeks ago we returned from Sydney with a new diagnosis of a rare genetic form of Parkinsonism called MULTIPLE SYSTEM ATROPHY or (MSA-P)
It is a rapid moving degenerative disease which will eventually shut down his entire body in less than 4 years! From being bed ridden with no muscle movement, no longer being able to talk, eat or breath without a machine and eventually his heart will no longer beat!
TERMINAL, NO CURE, no medication or treatments to help slow down the progression. It’s hard to think jason was a fireman less than 2 years ago, physically and mentally fit in the prime of his life, always happy and positive ready to help anyone in need and now it’s himself who needs you! BUT Jason will never give up!!
So JASONS Challenged himself to endure a 1500km bike ride bringing awareness to early onset Parkinson’s and mental health The 2 charities I am raising awareness for are LIVIN who support mental health and Shake It Up in support for more research into Early Onset Parkinson’s. Im usually a giver not a taker so it hard for me to ask. But every dollar raised will go into funding my journey over the last years of my life and helping support my wife and 4 daughters when I no longer can as I am our family’s soul income as my wife looks after my mum with Alzheimer’s.
The support already has been incredible.
Please share jasons story with as many people possible, there is no donation to small, we just want to give Jason the best life possible while he waits for the clock to tick down on a life which will be way to short!!
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- John Sbrocchi
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