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Help Jasmine's Fight for Kidney Transplant

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Hello, My name is Jasmine, Im a 32 year old woman and a single mother of two young boys, one who is special needs. This is quite hard for me as I am usually very independent and have been working and supporting myself since my early teens. About 5 1/2 years ago, right after the birth of my second son, I was diagnosed with FSGS kidney disease.
(Focal segmental glomerulosclerosis (FSGS) is a kidney disease that occurs when the glomeruli, the kidney's filtering units, become scarred until they no longer are able to filter the body.) This leads to kidney failure and the need for dialysis and or transplant. The form I have is also resistants to steriods and the symptoms came on sudden and fast. These symptoms include hypertension, extreme fluid retention, nerve problems, nausea, lack of appetite, and severe exhaustion and much more. I have pains all over my body from the build up of toxins and I rarely get a full nights sleep because of the restless leg syndrome that comes with everything.
Its very rare for a healthy young person and It turned my life upside down.
The symptoms I experienced not only keep me from working but kept me locked away as I was so embarrassed by the swelling in my face and body I had become unrecognizable to the people who I loved and cause pain from my limbs being stretched beyond their normal size, imagine having 9 month pregnant feet all the time but its your entire body face included, thats the swelling I experience everyday. People Ive known my entire life have not recognized me because of the swelling in my face, and if they did I could see the pure fear and pity they felt looking at me. Not only have I suffered physically but mentally and emotionally this illness has at times broken me. This continued on until April 2022 when my kidneys finally failed after my body tried to fight a lung infection that left me hospitalized for two weeks. I have been on dialysis since, I have had to return to in center Hemo treatment as the at home PD treatment wasnt cleaning my blood well enough. I am constantly in and out the hospital because I am unable to fight infections.
I need a kidney transplant, but in order to get on lists I must be able to travel to several hospitals across different states and with rent and groceries prices these days disability only barely covers the bills. I am humbly asking for help to cover the cost of travel expenses and sitters so that I may get the necessary testing done at different hospitals to be placed on their transplant list.
Again this is very hard for me, to ask for charity. But I am putting pride to the side in effort to be around for my children in the future.
Update: I greatly appreciate all the support I have received during this time. This illness has taken so much from me already, the worse being time. Time out having fun with my children, Time enjoying life with my friends and family, Time with my father who passed the day after christmas 2024, At that time I caught the Flu and because Of my inability to fight infection I went completely septic and almost died within weeks of my father passing. I never got the time to grieve because I have had to fight for my life. Ive lost years to this illness already.
Its terrifying knowing this could possibly be what takes me from this world but it is a blessing to know I have the love and support of so many people. I pray I am able to get through this and spend my life giving that same love back into the world.
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    Organizer

    Jasmine Barnes
    Organizer
    Kingston, NY

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