Please Help and Support Jamie.

Hello, My name is Kelly Sabo and I am creating this GoFundMe for my dear friend Jamie Rohr. She has recently been diagnosed with Interstitial Lung Fibrosis She is Hardest and strongest working gal I’ve ever known. She is selfless and her strength to overcome difficult obstacles are what fuels her to go bigger and harder . Jamie has battled a rare form of MS (NMO) for the last 20 years and she’s been very successful at fighting that disease however, she’s now been hit with ILF and it’s a harder battle and I Think she could use some help.

 

On January 2nd Jamie fell Ill with Covid. She carried a high fever with horrid coughing spells. She was put on antibiotics, steroids and breathing treatments for the first 2 weeks. Her fever went away and she started to feel a little better. Then on the 24th of January Jamies fever spiked again higher and faster. Her symptoms came back with a vengeance. She had gone to the ER and they told her that her chest X-ray was clear. They prescribed her with a steroid injection, more antibiotics and RX cough medicine.

 

Her cough at this point is causing more and more pain through out her back and her chest feels like an elephant is sitting on it. That is how she described it to me. I would call and text to check up on her daily and ea day she seemed to feel worse and her voice became weaker. It was initially thought that the illness was just lingering Covid symptoms.

 

Fast forward to January 28th Jamie’s is struggling and told Tom he needed to take her back to the ER again. After some testing they diagnosed her with Pneumonia. They changed her medications, gave her an inhaler and had her doing breathing treatments again and sent her home. She’s now lost 15 lbs and still running a temp of 102.9.

 

On the 31st Her symptoms and fever got worse. Her coughing that she said the pain is excruciating through out her entire body. Tom takes her back to Diley Ridge ER. Diley Ridge tells her after doing another X-ray that she still has pneumonia and her Covid test is negative so she just needs to go back home and continue her meds as prescribed on the 28th.

 

February 5th. 6 more days had gone by the steroids and Meds previously helping keep her temp down are no longer working. Her coughing is worse and she’s just now finishing her third round of antibiotics.

 

She began questioning the care that she had at Diley Ridge and reviewed her after care report before calling her Pulmonologist to update him with what’s going on.

Their Report noted that her pneumonia had actually spread to both lungs now. They totally overlooked her condition and how it had actually progressed to multifocial pneumonia. her visit to Diley Ridge completely dismissed the seriousness of her situation. Especially being immune compromised due to having MS.

 

Later in the evening on February 5th Jamie was back at the ER. Her condition had gotten to a point that she needed immediate attention.

 

They go to Valley View Medical this time. Her Pulmonologist is affiliated with this hospital and her hopes are he can now take over and coordinate her care. She goes and they immediately admit her. It was from here that the seriousness of her health was finally starting to be looked at.

 

Jamie is a realtor/Self Employed. Jamie has already been down since January 2nd. Hello, My name is Kelly Sabo and I am creating this GoFundMe for my dear friend Jamie Rohr. Jamie is the Hardest and strongest working cookie I’ve ever known. She is selfless and her strength to overcome difficult obstacles are what fuels her to go bigger and harder . Jamie has battled a rare form of MS (NMO) for the last 20 years.

January 2nd Jamie fell Ill with Covid. She carried a fever had horrid coughing spells. She was put on antibiotics, steroids and breathing treatments for the first 2 weeks. Her fever went away and she started to feel a little better. then on the 24th of January Jamies fever spiked again higher and faster. Her symptoms came back with a vengeance. She had gone to the ER and they told her that her chest X-ray was clear. They prescribed her with a steroid injection, more antibiotics and RX cough medicine. Her cough at this point is causing more and more pain through out her back and her chest feels like an elephant is sitting on it. That is how she described it to me. I would call and text to check up on her daily and ea day she seemed to feel worse and her voice became weaker. It was initially thought that the illness was just lingering Covid symptoms.

 

Fast forward to January 28th Jamie’s is struggling and told Tom he needed to take her back to the ER. After some testing they diagnosed her with Pneumonia. They changed her medications, gave her an inhaler and had her doing breathing treatments again and sent her home. She’s now lost 15 lbs and still running a temp of 102.9.

 

On the 31st Her symptoms and fever were worse. Her coughing is so bad and her pain all over her body is excruciating. Tom takes her back to the ER. Diley Ridge tells her after doing another X-ray that she still has pneumonia and her Covid test is negative so she just needs to go back home and continue her meds as prescribed on the 28th.

 

6 more days go by, the steroids and Meds previously helping keep her temp down are no longer working. Her coughing is worse and she’s just now finishing her third round of antibiotics.

 

She began questioning the care that she had at Diley Ridge and reviewed her after care report before calling her Pulmonologist to update him with what’s going on.

Their Report noted that her pneumonia had actually spread to both lungs now. They totally overlooked her condition and how it had actually progressed to multifocial pneumonia. her visit to Diley Ridge completely dismissed the seriousness of her situation. Especially already being immune compromised due to having MS. Now we are up to February 5th.

 

Within a few hours Jamie was back at the ER. Her condition had gotten to a point that she needed immediate attention.

 

This time they go to Valley View Medical in which her Pulmonologist is affiliated with. She goes and they immediately admit her. It was from here that the seriousness of her health was finally starting to be looked at. At this point Jamie has already been down since January 2nd, Shes Had multiple ER visits, she is still carrying high grade fever and her symptoms and pain are increasing to levels that she can’t manage with oral medication. She has battled a lot of pain through out her life with MS but her level of pain and weakness is now above what she’s ever endured in the past.

 

The doctors started to came up with a plan of action on what tests they needed to start asap. They needed a better look at her lungs, they needed to check her heart as and perform LOTS of blood work.

 

She is very Ill and out of it from the sever pain. She doesn’t recall them coming in to do her echocardiogram due to the pain and mixture of medications they are giving her to try and keep her comfortable. Even though it’s not helping much it’s just taking off the edge but still extremely painful.

 

She is having more trouble breathing and the coughing is so painful. When she goes into a coughing spell it drops her o2 levels very very low. She is now has an oxygen cannula.

 

The next day they did a procedure called a bronchoscopy to look at her lungs. Infectious Disease came in after her results were in and she was told she has a chronic disease called Interstitial Lung Fibrosis (scaring of the lungs)which is not treatable with antibiotics, they can battle it with large amounts of steroids but, it is a chronic disease. Some of her bloodwork is really out of whack, especially her SED Rate which is 77. Normal is 0-20. Rheumatoid Arthritis and Sarcoidosis can be a cause for this lung issue. Also, her legs have decided to stop working properly so “If” she is getting up she is now needing to use the walker or wheelchair.

 

As the week continues Jamie is not feeling better and her specialist are working together to figure out how to best tackle her diagnosis. They have decided that her condition needs more direct care and we’re working to get her transferred to the ICU unit at OSU. They want to get her started on a treatment called plasmapheresis. Getting a bed at OSU though is in high demand.

 

The current hospital is working with the specialist to try and treat her to the best of their ability until they can get her moved to Ohio State.

 

As of 2/12/22 she finally was transferred tO OSU.The treatment they are going to do is very dangerous and takes several steps before they can begin. They need to put in a swan line in her neck which is also referred to as pulmonary artery catheterization this is not pleasant nor comfortable. It’s a diagnostic way used to determine whether any hemodynamic, or blood flow-related, abnormalities exist in the heart and lungs. Once they insert the line in her neck it will stay there until they deem she’s getting better. Putting the line in has to be done before they can begin and schedule the Plasmapheresis treatment.

 

Jamie is just not starting to get care. It’s likely that she will be at OSU for perhaps at least 2 weeks or longer.

 

They are doing an MRI of her brain and full spine tonight. Tomorrow will be spent with all the pulmonary specialist.

 

I am reaching out because I see so many friends and family comment and want to offer their help. Because of Covid and the strict rules of visitation Jamie is only allowed one designated visitor during her entire stay at OSU. Tom is her person. He is coordinating and taking in a lot. He is missing a lot of work himself needing to be Jamie’s advocate and her strongest support. She is really leaning on Tom to help her struggle through the pain and confusion. Her medications are now causing hallucinations, as well as being disoriented due to all the medications they are hitting her with.

 

I know Jamie and she won’t ask for help. I personally know what kind of burden medical issues can create. It is important that Tom be there. She has to be scared and worn down. I know she’s stressed not being able to listen and process all that is going on and how to proceed with her own care.

 

I see so many comments and prayers people offering snd wanting to help. Im starting this gofundme to help reduce the financial burden and stressors that I know comes with being hospitalized and out of work. It’s now been 44 days since Jamie has worked and as I mentioned before Tom is also missing work to help be Jamie’s support and advocate. This gofundme is a gift that will help Jamie and Tom during her down time and all the lost wages that they not being able to bring in. This will also allow Tom to continue to be off and help Jamie get through this fight. She has a good ways to go yet with no timeline of when she may feel better and be able to return to work. I will continue to update Jamie’s condition as it comes in.

 

Any amount is appreciated and a great blessing to Jamie and Tom. Thank you

Shes Had multiple ER visits, she is still carrying high grade fever and her symptoms and pain are increasing to levels that she can’t manage . She has battled a lot of pain through out her life with MS but her level of pain and weakness is now above what she’s ever endured before.

 

The doctors started to came up with a plan of action on what tests they needed to start asap. They needed a better look at her lungs, they needed to check her heart as and perform LOTS of blood work.

 

She is very Ill and out of it from the sever pain. She doesn’t recall them coming in to do her echocardiogram due to the pain and mixture of medications they are giving her to try and keep her comfortable. Even though it’s not helping much it’s just taking off the edge but still extremely painful.

 

She is having more trouble breathing and the coughing is so painful. When she goes into a coughing spell it drops her o2 levels very very low. She is now has an oxygen cannula.

 

The next day they did a procedure called a bronchoscopy to look at her lungs. Infectious Disease came in after her results were in and she was told she has a chronic disease called Interstitial Lung Fibrosis (scaring of the lungs)which is not treatable with antibiotics, they can battle it with large amounts of steroids and is a chronic disease. Some of her bloodwork is really out of whack, especially her SED Rate which is 77. Normal is 0-20. Rheumatoid Arthritis and Sarcoidosis can be a cause for this lung issue. Also, her legs have decided to stop working properly so “If” she is getting up she is now needing to use the walker or wheelchair.

 

As the week continues Jamie is not feeling better and her specialist are working together to figure out how to best tackle her diagnosis. They have decided that her condition needs more direct care and we’re working to get her transferred to the ICU unit at OSU. They want to get her started on a treatment called plasmapheresis. Getting a bed at OSU though is in high demand.

 

The current hospital is working with the specialist to try and treat her to the best of their ability until they can get her moved.

 

As of 2/12/22 she finally was transferred tO OSU.The treatment they are going to do is very dangerous and takes several steps before they can begin. They need to put in a swan line in her neck which is also referred to as pulmonary artery catheterization this is not pleasant nor comfortable. It’s a diagnostic test used to determine whether any hemodynamic, or blood flow-related, abnormalities exist in the heart and lungs. Once they insert the line in her neck it will stay there until they deem she’s getting better. Putting the line in has to be done before they can begin and schedule the Plasmapheresis treatment.

 

It is now February 12th and Jamie is just in the starting phase to being trying to tackle her condition. It’s likely that she will be at OSU for perhaps at least 2 weeks or longer.

 

They are doing an MRI of her brain and full spine tonight. Tomorrow will be spent with all the pulmonary specialist.

 

I am reaching out because I see so many friends and family comment and want to offer their help. Because of Covid and the strict rules of visitation Jamie is only allowed one designated visitor during her entire stay at OSU. Tom is her person. He is coordinating and taking in a lot. He is missing a lot of work himself needing to be Jamie’s advocate and her strongest support. She is really leaning on Tom to help her struggle through the pain and confusion. Her medications are now causing hallucinations, as well as being disoriented due to all the medications they are hitting her with.

 

I know Jamie and she would never ask for help. I personally know what kind of burden medical issues can create. It is important that Tom be there. She has to be scared and worn down. I know she’s stressed not being able to listen and process all that is going on and how to proceed with her own care.

 

Im starting this gofundme to help reduce the financial burden and stressors that I know comes with being hospitalized and out of work. It’s now been 44 days since Jamie has worked and as I mentioned before Tom is also missing work to help be Jamie’s support and advocate. This gofundme is a gift that will help Jamie and Tom during her down time and help replace lost wages and future medical bills. This will also allow Tom to continue to be off and help Jamie get through this fight. She has a ways to go yet with no timeline of when she may feel better and be able to return to work. I will continue to update Jamie’s condition as it comes in.

 

Any amount is appreciated and will be such a surprise and great blessing to Jamie and Tom. Thank you

PS, Kelly here, I have never done a GoFundMe before so I want it to be known I'm looking for the spot to update the account settings to ensure that the funds go Directly to Jamie.