My story
Fri, Jun 07, 2019 04:26 PM
I’m usually a very private person and do not usually share personal or health issues about myself.....however After everything that I’ve experienced I want to share what has happened to me (so far) and hope that- at the very least- it prevents at least one woman from going through anything close to what I have and will unfortunately continue to go through.
I’m just going to say:
Choosing birth control should NEVER EVER put your life at risk! And because they are still using this birth control even though it’s definitely NOT safe, I’m going to tell you my experience with Mirena in hopes that this will help someone who has it or is thinking about using it!
After having my last child in 2008 I chose to use the Mirena birth control. Yep, I was told by my doctor (who is a high risk doctor) that it was a safe and effective birth control. I had done little research on it and just listen to what my doctor had to say about it. It was pretty new then, and I hadn’t heard anything about it at that time.
When I was in for a check up close to the five-year mark ( I was told I was allowed to keep the Mirena in from 5 to 7 years) they said that the string was missing and that the IUD had probably fell out....and that this was fairly common!!!!!......hhhmmmmmm.... Well I really couldn’t get over the fact that they said it could just fall out and I wouldn’t know it!?!!!........uummm yeah.....well that’s because it didn’t....
Before finding the IUD I was experiencing other symptoms and problems, Like body aches that were head to toe, I was experiencing pain EVERYWHERE in my body..... I....had....pain....everywhere......severe pain in my feet, swelling in my legs/feet, severe pain in my back, severe abdominal pain, every joint, every muscle in my body hurt, My skin hurt to just touch it....I was so sick to my stomach, very nauseous everyday & headaches, it was just everything and everywhere.
Anyway I went to see a different doctor about my lower back pain they gave me an x-ray and they must’ve seen something, because they gave me a ultrasound.....
Okay, here’s where it gets good people!......
during the ultrasound is when they tell me that they found the Mirena IUD embedded in my hip.... yep! you heard that right...in-my-freaking-hip-bone!!.... so yeah it literally pierced through all of my female parts....and was in my HIP!!
Gulp! Okay...deep breath....let’s go on.....
So I had surgery to have the Mirena removed from my hip, and chose to have a tubal ligation during the same surgery as well, after the surgery the doctor said: “it couldn’t have gone any better!!” and “this was a textbook surgery”!!!!........The Mirena was out! Thank God, I seriously thought “how lucky I am it went so well!!!” After hearing this I never thought I would ever have to worry about the Mirena IUD again, how much worse could it be than having an IUD removed from your freaking hip bone right!!!???!!!
boy was I wrong.....
And it definitely can and did get a whole hell of a lot worse......
Because of all the pain I was experiencing throughout my body during that time, I was diagnosed with fibromyalgia, they put me on medicine: gabapentin and amitriptyline, btw gabapentin is a nerve pain killer-
And well yeah....yep....that Mirena ripped through my abdomen tagging everything in its path and reeking havoc in there while I was on gabapentin, so even though I was in a lot pain (because it was literally ripping open my insides) I had nerve pain killer (gabapentin) in my system and didn’t know it was as severe as it was. Obviously it was (and still is) painful in there, but for some reason I had experienced most of the pain in the bottom of my feet, my lower back & my legs (which is where I still experience most of the pain today). Yes my abdomen hurt-but the symptoms in my back/legs/feet were much more prevalent, Which is probably why they weren’t able to figure it out.
So As the Mirena had traveled through my abdomen and before embedding itself into my hip, it went through my ENTIRE abdomen..... it ripped my uterus open-making it look like I had a C-section (which I never did) now my uterus has attached itself to my bladder, it also caused adhesions, lesions and infections in my abdomen everywhere it went, so when I laid down to sleep at night the infection went into my upper abdomen and sat around my organs which left webbing, scarring and pockets around my major organs, how much damage/scarring?? I don’t know yet.
Okay....So.....like I said I had the Mirena removed like over 4 or 5 YEARS ago, and I was diagnosed with fibromyalgia right?!?!?.....well in April 2018 of this year I got severely sick and it ended with an ambulance ride to the ER, had a CAT scan done and here’s how We find everything out: apparently one of the clips that was put on my Fallopian tube had come off (because apparently my Fallopian tubes were completely damaged from the Mirena) the clip was now sitting in my lower abdomen on my SPINE. The other clip was still on the other Fallopian tube but was no longer attached and was coming off as well. So back to surgery.....During the surgery to have the clips found and removed and my fallopian tubes removed This is when the doctor found all the massive internal injury, infection and scarring in my abdomen......seriously 4-5 years after I had the Mirena removed. I was told due to the scaring I have inside my abdomen that I really shouldn’t have any more surgeries, but because of the damage in their I will most likely have too anyway. I am not able to have children anymore because of this, and thankfully I didn’t want anymore children before this happened.
I still don’t know what all I will have to face because of this.....I still have a lot of unanswered questions....????.......more surgeries.....More body parts removed.....?????......I’m not sure yet....
but here’s what I do know-I am damn lucky to have lived through it.
Update June 2019:
I’ve been told that there’s nothing that can be done medically to help....my insides are completely damaged.
My liver is going into failure because it’s incased in scarring, I’ve had yellow jaundice, liver edema & my enzymes are consistently high, my liver is swollen and is extremely painful....also extreme itching EVERYWHERE!
I have so much abdominal scarring that it’s squeezing my organs together like “straight jackets” and due to this I’m on a liquid diet.
However I’m not giving up..... I started cbd and rso....this has been a huge help! I have itched for almost 2 years and a little over a week ago it all stopped.....completely!
I’ve been taking cbd for 7 weeks now and have definitely had improvement! I am praying that this can stop me from going into full liver failure, I’m not a likely candidate for a transplant because of the damage the Mirena did inside of my abdomen so this is my only option. There have been studies that cbd can heal the liver and also get rid of adhesions if taken for a long enough time......if I can live through what that Mirena did while traveling in my abdomen.....I truly believe I will live and my body is strong enough to keep healing with the help of cbd! I have not been able to work because of all this happening, my husband is our family’s only provider, cbd is expensive and we are more than just struggling.
I’m hoping that with help I will be able to keep taking the cbd.
Thank you for reading my story\uD83D\uDE4F\uD83C\uDFFC❤️
Fri, Jun 07, 2019 04:26 PM
I’m usually a very private person and do not usually share personal or health issues about myself.....however After everything that I’ve experienced I want to share what has happened to me (so far) and hope that- at the very least- it prevents at least one woman from going through anything close to what I have and will unfortunately continue to go through.
I’m just going to say:
Choosing birth control should NEVER EVER put your life at risk! And because they are still using this birth control even though it’s definitely NOT safe, I’m going to tell you my experience with Mirena in hopes that this will help someone who has it or is thinking about using it!
After having my last child in 2008 I chose to use the Mirena birth control. Yep, I was told by my doctor (who is a high risk doctor) that it was a safe and effective birth control. I had done little research on it and just listen to what my doctor had to say about it. It was pretty new then, and I hadn’t heard anything about it at that time.
When I was in for a check up close to the five-year mark ( I was told I was allowed to keep the Mirena in from 5 to 7 years) they said that the string was missing and that the IUD had probably fell out....and that this was fairly common!!!!!......hhhmmmmmm.... Well I really couldn’t get over the fact that they said it could just fall out and I wouldn’t know it!?!!!........uummm yeah.....well that’s because it didn’t....
Before finding the IUD I was experiencing other symptoms and problems, Like body aches that were head to toe, I was experiencing pain EVERYWHERE in my body..... I....had....pain....everywhere......severe pain in my feet, swelling in my legs/feet, severe pain in my back, severe abdominal pain, every joint, every muscle in my body hurt, My skin hurt to just touch it....I was so sick to my stomach, very nauseous everyday & headaches, it was just everything and everywhere.
Anyway I went to see a different doctor about my lower back pain they gave me an x-ray and they must’ve seen something, because they gave me a ultrasound.....
Okay, here’s where it gets good people!......
during the ultrasound is when they tell me that they found the Mirena IUD embedded in my hip.... yep! you heard that right...in-my-freaking-hip-bone!!.... so yeah it literally pierced through all of my female parts....and was in my HIP!!
Gulp! Okay...deep breath....let’s go on.....
So I had surgery to have the Mirena removed from my hip, and chose to have a tubal ligation during the same surgery as well, after the surgery the doctor said: “it couldn’t have gone any better!!” and “this was a textbook surgery”!!!!........The Mirena was out! Thank God, I seriously thought “how lucky I am it went so well!!!” After hearing this I never thought I would ever have to worry about the Mirena IUD again, how much worse could it be than having an IUD removed from your freaking hip bone right!!!???!!!
boy was I wrong.....
And it definitely can and did get a whole hell of a lot worse......
Because of all the pain I was experiencing throughout my body during that time, I was diagnosed with fibromyalgia, they put me on medicine: gabapentin and amitriptyline, btw gabapentin is a nerve pain killer-
And well yeah....yep....that Mirena ripped through my abdomen tagging everything in its path and reeking havoc in there while I was on gabapentin, so even though I was in a lot pain (because it was literally ripping open my insides) I had nerve pain killer (gabapentin) in my system and didn’t know it was as severe as it was. Obviously it was (and still is) painful in there, but for some reason I had experienced most of the pain in the bottom of my feet, my lower back & my legs (which is where I still experience most of the pain today). Yes my abdomen hurt-but the symptoms in my back/legs/feet were much more prevalent, Which is probably why they weren’t able to figure it out.
So As the Mirena had traveled through my abdomen and before embedding itself into my hip, it went through my ENTIRE abdomen..... it ripped my uterus open-making it look like I had a C-section (which I never did) now my uterus has attached itself to my bladder, it also caused adhesions, lesions and infections in my abdomen everywhere it went, so when I laid down to sleep at night the infection went into my upper abdomen and sat around my organs which left webbing, scarring and pockets around my major organs, how much damage/scarring?? I don’t know yet.
Okay....So.....like I said I had the Mirena removed like over 4 or 5 YEARS ago, and I was diagnosed with fibromyalgia right?!?!?.....well in April 2018 of this year I got severely sick and it ended with an ambulance ride to the ER, had a CAT scan done and here’s how We find everything out: apparently one of the clips that was put on my Fallopian tube had come off (because apparently my Fallopian tubes were completely damaged from the Mirena) the clip was now sitting in my lower abdomen on my SPINE. The other clip was still on the other Fallopian tube but was no longer attached and was coming off as well. So back to surgery.....During the surgery to have the clips found and removed and my fallopian tubes removed This is when the doctor found all the massive internal injury, infection and scarring in my abdomen......seriously 4-5 years after I had the Mirena removed. I was told due to the scaring I have inside my abdomen that I really shouldn’t have any more surgeries, but because of the damage in their I will most likely have too anyway. I am not able to have children anymore because of this, and thankfully I didn’t want anymore children before this happened.
I still don’t know what all I will have to face because of this.....I still have a lot of unanswered questions....????.......more surgeries.....More body parts removed.....?????......I’m not sure yet....
but here’s what I do know-I am damn lucky to have lived through it.
Update June 2019:
I’ve been told that there’s nothing that can be done medically to help....my insides are completely damaged.
My liver is going into failure because it’s incased in scarring, I’ve had yellow jaundice, liver edema & my enzymes are consistently high, my liver is swollen and is extremely painful....also extreme itching EVERYWHERE!
I have so much abdominal scarring that it’s squeezing my organs together like “straight jackets” and due to this I’m on a liquid diet.
However I’m not giving up..... I started cbd and rso....this has been a huge help! I have itched for almost 2 years and a little over a week ago it all stopped.....completely!
I’ve been taking cbd for 7 weeks now and have definitely had improvement! I am praying that this can stop me from going into full liver failure, I’m not a likely candidate for a transplant because of the damage the Mirena did inside of my abdomen so this is my only option. There have been studies that cbd can heal the liver and also get rid of adhesions if taken for a long enough time......if I can live through what that Mirena did while traveling in my abdomen.....I truly believe I will live and my body is strong enough to keep healing with the help of cbd! I have not been able to work because of all this happening, my husband is our family’s only provider, cbd is expensive and we are more than just struggling.
I’m hoping that with help I will be able to keep taking the cbd.
Thank you for reading my story\uD83D\uDE4F\uD83C\uDFFC❤️
Organizer and beneficiary
Jami Steiner
Beneficiary