...please help us fund for critical medical treatment not available in New Zealand
Jaimee is 17 years-old & has Ehlers Danlos Syndrome, a rare genetic connective tissue disorder that affects every part of her body; joints, bones, soft tissues, blood vessels & internal organs. As a result she has developed abdominal vascular compression syndromes (AVCS).
She can't eat, drink or receive any nutrients through a feeding tube without suffering from excruciating pain, nausea & vomiting which is being caused from the AVCS. She has lost a significant amount of weight & has become very malnourished.
It's now critical that she travels to Germany for specialized life saving medical treatment & surgery that is not available in NZ. We leave on 9th June.
Jaimee bleeds internally & has been vomiting up blood for the past 5 years, unfortunately she has an abnormal gene that's associated with small vessel bleeds & factor X11 deficiency. Medical professionals have not been able to stop this bleeding in NZ so she'll undergo additional testing & possibly surgery with Prof of Gastroenterology while in Germany.
Germany is our only hope. There is a 10% chance she could die from the surgery, but the reality is, if we stay here and receive no help, she will die.
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Before 2018, Jaimee was a talented Artistic Roller Skater & went to the NZ Nationals on 3 occasions. Talented in speech & drama, loved horse riding, singing, music & dance, did several pantomimes with the local theater & was cast as a lead in a short film.
Jaimee has endured so much for so long; physical & mental exhaustion!
All she wants is a chance to live & to be able to do the things she once loved.
Funds donated will be used for flights, accommodation, scans, surgery, gastroscopy, and any other medical expense.
Thank you for your prayers, kindness & generosity.
This page has been created as an alternative to the NZ givealittle page.
Organizer