Friends, we need your help! Did you know February is Turner Syndrome awareness month? Turner syndrome is a genetic disorder that only affects girls. 1 in 2000 girls are born with this condition. Girls with TS are missing either all or part of one of their X chromosomes. Most babies with TS are given a 1-2% chance of being born. TS is a condition that is near and dear to our hearts, because our very own Jade has Turner Syndrome. We were given a 0% chance that Jade would be born due to her complications, but here she is fighting strong and living her life to the fullest! The fact that she is here is truly a miracle!
TS can cause many health conditions including heart issues, kidney disorders, celiac disease, poor growth, thyroid problems, vision problems and many others. Jade has experienced all of the those things, but thankfully she has a very mild case and none of her conditions are life threatening.
This July we have the opportunity to go to our first Turner Syndrome conference in Phoenix AZ. Going to this conference would be an absolute dream come true for Jade. She would have the opportunity to learn so much more about her condition and she would get to meet other girls her age that have it as well. Since this condition is so rare, she’s never met another child her age in person with TS. This condition can feel very lonely, because so many people haven’t heard of it and don’t realize all of the difficulties Jade has had to go through, because it’s not very outwardly visible. Getting to be around other TS sisters her age that she can relate to can be really helpful for towards her confidence and self esteem and help build a strong support system for her. We’ve heard this conference is life changing and builds lifetime bonds with the TS families that connect through it.
Of course the catch all about the conference is it’s very expensive, and can cost up to $600 for just Jade and her mom to attend. There’s also flights, hotel and other travel expenses as well. It would be so amazing if anyone feels like they would like to give. If everyone gave just one dollar, that could easily amount to our $2000 goal. It would mean the world to us if you would even just be willing to share this with your friends to raise awareness about Turner Syndrome. We truly thank you fo the bottom of our hearts!
The Reed family
PS If you’re interested in learning more about Jade’s Turner Syndrome journey you can check out her [email redacted] We’ve dedicated this page to spreading awareness and giving you a glimpse into the life of what Turner Syndrome really is like
TS can cause many health conditions including heart issues, kidney disorders, celiac disease, poor growth, thyroid problems, vision problems and many others. Jade has experienced all of the those things, but thankfully she has a very mild case and none of her conditions are life threatening.
This July we have the opportunity to go to our first Turner Syndrome conference in Phoenix AZ. Going to this conference would be an absolute dream come true for Jade. She would have the opportunity to learn so much more about her condition and she would get to meet other girls her age that have it as well. Since this condition is so rare, she’s never met another child her age in person with TS. This condition can feel very lonely, because so many people haven’t heard of it and don’t realize all of the difficulties Jade has had to go through, because it’s not very outwardly visible. Getting to be around other TS sisters her age that she can relate to can be really helpful for towards her confidence and self esteem and help build a strong support system for her. We’ve heard this conference is life changing and builds lifetime bonds with the TS families that connect through it.
Of course the catch all about the conference is it’s very expensive, and can cost up to $600 for just Jade and her mom to attend. There’s also flights, hotel and other travel expenses as well. It would be so amazing if anyone feels like they would like to give. If everyone gave just one dollar, that could easily amount to our $2000 goal. It would mean the world to us if you would even just be willing to share this with your friends to raise awareness about Turner Syndrome. We truly thank you fo the bottom of our hearts!
The Reed family
PS If you’re interested in learning more about Jade’s Turner Syndrome journey you can check out her [email redacted] We’ve dedicated this page to spreading awareness and giving you a glimpse into the life of what Turner Syndrome really is like
Organizer
Phylicia Reed (Organizer)
Organizer
Dayton, OR