Up until the end of 2020 Isla was living a happy, healthy childhood.
Then, the crippling news and complete shock to her family and friends she was diagnosed with Infantile Batten Disease, a terminal neuro-degenerative disease, which effects her brain cells and nervous system, this disease is fatal and fast moving!
Isla said a few words but had slow development, she has already lost the ability to speak, walk, and over the next few years Isla will lose all her vision and mobility, along with all fine motor skills, she already requires full care and in the last years of her life will require around the clock palliative care.
Isla is surrounded by a loving family. However to help them cope with this debilitating disease their friends and family have started this GoFundMe campaign to help them cover ever increasing expenses.
Their ultimate goal is to set Isla up comfortably, in her very own family home which they thought they had time for, but has abruptly been taken away!
Any money raised will not only help in paying for medical expenses, but will also be used to make sure Isla’s remaining time is as memorable as possible, maybe even contribute to their dream of their family home!
UPDATE: We have raised the bar as Isla's family are desperately trying to get to the US to be selected for gene therapy.
Thank you to everyone that has donated so far, please continue to spread the word.
DonationsSee top donations
- Olivia Turner
- Sturt Street Early Learning
Organizer and beneficiary
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