We are asking for your support for our son Isaiah. At just two weeks old, our son face life threatening challenges where we spent 30 days in the PICU. Since then, our journey has been filled with countless doctor visits, therapy sessions, hours on the phone with insurances, and unwavering hope. At 3 months old he was diagnosed with a rare chromosomal deletion. While Isaiah is expected to be able to do all things as normal, he will face severe delays. He started to sit independently at 12 months old, a milestone that took incredible effort and determination.
We are preparing for a co-op surgery at Stanford Children's Hospital in June with their aerodigestive (pulmonary, ENT) and urology teams, followed by intensive therapy interventions in Arizona. As many of you may know, Nevada is a resource-poor state. We have tried several charity and non-profit organizations, and Isaiah has three different health insurance plans. Despite being on every waitlist for physical therapy, the ones that can see him don't take his primary insurance, so we have to pay out of pocket for his therapy sessions. He goes to occupational therapy biweekly, receives speech therapy, and works with a nutritionist. Isaiah will also be getting foot orthotics and special walkers to help him be able to walk, as he is still not weight bearing.
We are asking for your help to cover lodging costs during the month of June while we are away at Stanford and Arizona, as well as ongoing therapy sessions. We have made every effort possible to avoid being here today to ask for your assistance, but as any parent knows, we are willing to do anything and everything possible to give our son the tools and opportunities he needs to live a normal life. Despite the on going challenges our son is a bright and loving boy. Cognitively, my son is age appropriate—his body just can't keep up with his mind. His mind is curious and eager to learn, his body struggles to keep up. making every day activities that many of us take for granted a real challenge for him. It is incredibly hard for us to make this page, as parents we feel the weight of having to ask for your help. However, the responsibility, hope and determination to give our son the opportunities and resources he needs to overcome his challenges is much more. Even if it means being vulnerable by sharing our story and asking strangers for help. Every donation brings us closer to giving our son the tools and resources he needs to live a fuller, more independent life. Our wish is to see our son chase a ball around by his 2nd birthday this december. Thank for taking the time to read out story. Your support truly means the world to our family. "hoy por nosotros, mañana para ustedes" God bless you all. Dios los bendiga.






