Around age 4, Janelle was told that Isaac had viral arthritis due to a recent viral infection that he’d had. He was in pain but eventually he returned to normal and was running around again. Subsequent pain throughout childhood was understandably explained away by “growing pains”.
As a young teenager, a children’s Rheumatologist diagnosed him with Juvenile Idiopathic Arthritis (JIA) when the pain seemed to settle in his joints. At age 16, after he had gone for a few months without medication, and was pain-free, Isaac was told it had gone into remission and may or may not return. He lived a few years in relative comfort, although he sometimes had “ flare ups”.
About a year ago, Isaac began noticing quite a bit of pain in his back and eventually had to stop working. Thinking the arthritis had come back and settled in his spine, an appointment was made with another Rheumatologist. After six months, Isaac finally had his appointment and the doctor ordered an MRI to rule out any other explanation for the pain. The MRI would be a three month wait.
Isaac patiently waited and dealt with the pain by moving around and taking ibuprofen. Finally the MRI was done, and when the office of a Neurosurgeon called for an immediate appointment, he and his parents felt a little concerned, to say the least.
The Neurosurgeon said that the MRI came back with a CRITICAL RESULT. They had found multiple tumours in his spine, the largest in his lower back, but extending all through the spine.
WHAT WE KNOW AS OF AUGUST 2018
* There are several intraspinal enhancing masses.
* The two largest tumours virtually fill the spinal canal.
* Bony remodelling- meaning that these have been forming for years
* Signs of possible malignant degeneration (cancer cannot yet be ruled out).
* Neuroradiologist advises brain MRI in her report (which has yet to happen).
* First Surgery scheduled for September 7, 2018, almost a full 2 months from diagnosis.
* Isaac appears the picture of health, but is increasingly experiencing extreme pain and numbness down his legs.
We are hoping and expecting that these lesions are benign, and that Isaac will recover and live a pain-free life. However, here-to-recovery could prove to be painful and lengthy for Isaac. There will be many extra costs associated with this journey, the exact cost is impossible to know, but they are costs that are unexpected at an already expensive time of year (back to school for other Crawford children). With everything else to worry about, we don’t want Blake and Janelle and their family to have to worry about how they will make it all work.
SOME SPECIFIC NEEDS
* Travel back and forth to Calgary (2.5 hours)
* Rental of comfortable vehicle to accommodate needs pre and post surgery
* Childcare (it is possible Janelle and/or Blake could be gone for a week or more at a time)
* General Expense of being away from home ie: food or emergency needs
* Unforseen Expenses associated with possible short or long term paralysis
* Possible Prolonged Stays due to complications or rehabilitation
* Use of Private Clinics if needed
A FINAL COMMENT
From the time an appointment was made with the Rheumatologist to the time of actual treatment, it will have been eleven months. Eleven more months these tumours have had time to grow and perhaps, multiply. If further tests or treatment need to be done, Blake and Janelle do not want to have to wait. Blake’s father died of cancer in his 50’s and Blake’s sister died of cancer in her 20’s, four years ago. They do not have time to treat this lightly, Isaac will be 20 on September 30th, and has a full and long life ahead of him.
We are so grateful for your support and love for Isaac and his family! We know the chances of a positive outcome are greatly increased through your kind support.
PLEASE SPREAD THE WORD BY SHARING THIS POST, OR TALKING TO PEOPLE WHO WOULD BE INTERESTED IN THIS CAUSE, THANK YOU!
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