Help Hope Continue Her Fight

My name is Marc, and I’m writing this for the love of my life—my fiancée, Hope. She’s been my person since high school. In March, we will have been together for 10 years. She is my best friend, my future, and the center of world.

i only hope i can tell her story in the best way possible as i cant tell you how hard its been to watch my partner struggle everyday with this life changing experience. To everyone that is reading this, know that it took so much to write this for her. I love her more than anything and hope anyone dealing with this has someone there for them as much as i can possibly try to be there for her.

This story is not about sadness but about her strong& brave fight shes been battling everyday now. Hope i love you .

On January 16th, 2021, everything changed.

Hope had a seizure that came out of nowhere. Three weeks later, an MRI confirmed what we never imagined we’d hear. Hope was diagnosed with a brain Arteriovenous Malformation (AVM) and three aneurysms. In an instant, our normal life completely changed. Being 21-22 years old i cant tell you how unprepared we were for this challenge. All we could do was take every piece of information over the next few moments & months and decide what we could and would do to make sure we were doing everything we could.

Over the next months, we met with countless doctors and specialists. After what felt like endless appointments, we were finally given hope, a plan for a 100% cure. The plan was brain surgery to completely remove the AVM and aneurysms.

The day of surgery came. Hope was ready. I was ready. I can’t tell you about how scared we were of the idea of having brain surgery , I can definitely tell you she was the strong one out of the both of us & did not fear anything and wanted to do anything possible to be done with this. We believed this was the moment that would give her life back.

Instead, we were told that same day that surgery was no longer an option.

We were crushed. It felt like the ground disappeared beneath us.

It felt like all this time all these doctors appointments and all these planning didn’t mean anything anymore.

We were told the only option was radiation and chemotherapy.

After that heartbreak, we met with a radiologist and made a new plan — radiation treatment. At first, radiation went well, and once again we allowed ourselves to believe we were moving forward. But then complications set in. The radiation caused inflammation in her brain, which led to daily seizures. Hope began having seizures every single day. She was forced to leave work early and sometimes couldn’t work at all. I wish i could say theres a day that goes by that i feel shes okay. Knowing i need to be ready at the drop of a dime to be there just like in the beginning of all of this.

Through all of this, Hope has remained unbelievably strong and optimistic. I don’t know how she does it — but she does. I can even admit she’s the one to tell me to be strong about this sometimes.

Because of the inflammation caused by radiation, Hope is now undergoing infusion treatments to try to bring the swelling down and reduce the seizures. These treatments are ongoing and necessary, but they come with significant financial strain.

Despite doing everything we possibly can, the cost of appointments, treatments, infusions, medications, travel, and time away from work has become overwhelming. I’ve done everything in my power to support her, protect her, and carry this weight — but we can’t do it alone anymore.

We are asking for help raising $15,000 to cover:

• Ongoing radiation-related care and infusion treatments

• Past and current medical bills

• Continued care as we fight for Hope’s health and future

Hope is my high school sweetheart. She is the woman I plan build a life with. Watching her endure pain, seizures, and uncertainty and still wake up every day choosing hope is both heartbreaking and inspiring. Through it all I can’t tell you how proud I am to say that this is my partner for life. Watching her go through her everyday life with a smile on her face and being ready to help her friends and her family at the drop of a dime really shows me that as her partner I need to do anything in my power to help her and that’s why I finally feel comfortable making something like this for her.

If you’re able to donate, share, or keep Hope in your thoughts and prayers, please know it means more to us than words can ever express. I know times are tough for everyone and I appreciate everyone that took the time to read her story as I think I tried to write this as best as I could .

Thank you for reading our story and for helping Hope continue her fight.

With all my love,

Marc