Honor Sofie Marie with a Celebration of Life

On October 28,2024 the Haynes family unexpectedly lost our Princess Warrior, Sofie Marie Haynes. A Celebration of Life will be held for Sofie in honor of her 11th birthday. As they try to plan Sofie’s Celebration during this most difficult time, any contributions made to help fund her celebration will be an immense blessing to her parents, Russell and Kristina Haynes, and her siblings Kristina, Elizabeth, Russell, and Sarah.

Sofie began defying the odds even before her birth, and her spirit touched everyone she met. Over her ten years with us, she reshaped how the pediatric medical community approaches Trisomy 13 and other genetic syndromes. Her legacy will live on in the advocacy and opportunities she created for other special needs children.

Sofie Marie will always be remembered for her playful personality, her love for her family, her obsession with 80s rock, and her relentless fight.

Any contribution, love, and support is greatly appreciated.