Help Faith With her Medical Expenses

Hi, my name is Faith Johnson. I have been debating to start this for years, but I really need help now more than ever. I got sick back in 2017 when I was 17 years old. I was diagnosed with Complex Regional Pain Syndrome (CRPS) after what was supposed to be a simple surgery to fix a previous surgery in 2011 on my left foot. Unfortunately, this surgery in 2017 caused CRPS, which is known to be the most painful disease known to man. Within three months of this surgery my health declined so fast and I was so sick. I always hoped it was just post-op recovery taking longer than it should and that it would go away soon, but it never did. It never went away, it never got better, it actually got worse, a lot worse. The past 7 years I have struggled with my health, been diagnosed with things I never even knew existed, and had to go through so many traumatic medical surgeries, procedures, treatments, appointments, so much just for the hope of being “cured” one day but my chronic illnesses and terminal illnesses don’t have a cure, most don’t even have any treatments. As my health started going downhill and progressing worse and worse, I had to move back in with my parents, I had to stop college after trying so hard to keep my education going, I had to stop working completely. I had to stop everything. I now rarely leave my bed because of how sick I am, and when I do leave my bed it is to go to a doctor's appointment or to go to the hospital. Since 2022, I have spent more time in the hospital than at home. I continue suffering every single day from my chronic and terminal illnesses, I am on palliative care until I choose when I want to go on hospice care. I live in 10/10 excruciating pain 24/7, I live in constant pain, nausea, vomiting, dizziness, headaches, migraines, debilitating fatigue, fainting, debilitating weakness, severe muscle spasms, bone pain, brain fog, constant tachycardia, shortness of breath and so much more. I have not been able to walk at all since the beginning of 2022, when I first got sepsis. I now am a bilateral leg amputee, I still cannot walk but hoping whenever I finish healing from my amputations I can get prosthetics and learn how to walk again. I have been struggling so much with constantly getting sepsis and going into septic shock for over two and a half years and no one knows why. My organs are failing and no one knows why. I live with several genetic diseases and autoimmune diseases and we don’t even know everything that’s going on. I have so many different chronic illnesses that I will share at the end of this. I have severe gastroparesis and intestinal failure and cannot eat or drink anything by mouth. I have a g tube to constantly drain my stomach bile 24/7 because my gastroparesis and intestinal failure is so severe I cannot even digest my own bile. Even though I drain 24/7 I still vomit and have nausea all of the time. My g tube does help me so I am not throwing up every 10 minutes though, which I’m so grateful for. I have a central line (Hickman line) that goes to my heart and I receive all of my nutrition, fluids, and meds through that. This is the only reason I am alive. I have been on TPN (IV nutrition) for over three years. Before this we tried J tube feeds which bypasses my stomach but we did not realize how bad my intestinal failure was at the time. I also have a superpubic surgical catheter because for some reason my bladder decided to stop working and decided to fail. Last year I went into a coma for awhile and I was not supposed to live past that first day, somehow by a miracle I did and I am still here. No doctor could explain it. No one could understand how I survived what I went through. Unfortunately, because my blood pressure was so low they had to max me out on presser medication to raise my blood pressure. They maxed me out on the dosages but also the amount. I was on all of them, there was not another one. I was intubated and on a vent max settings because I could not breathe on my own and with the vent maxed out I was still desatting. I went into severe heart failure, kidney failure, liver failure, and so much more. Everything in my body was failing. I lost all blood flow to my legs because of the presser medications, so I just had to get a bilateral leg amputation, just a few weeks ago because I was finally stable enough to get this surgery. I am still recovering from that surgery and I am waiting for my surgery date to get my ileostomy and colectomy due to how severe my intestinal failure is. I have been waiting for over a year for this surgery. This has been a very hard several years and it has only gotten worse and harder. I struggle with wanting to give up nearly everyday because no one should have to live in so much pain and live with so many symptoms that cannot be controlled and a body that seems it’s against you no matter what you do, but I know there is a reason I am still here. Since I cannot work I struggle with getting enough money to travel to my appointments out of state to see the specialists that I need to see and paying off my medical bills I have from surgeries, procedures, tests, hospital stays, etc. Because my health is so complex I have to see several specialists that are out of state and even across the country. Obviously, this gets very expensive to see these specialists, but I don’t have any other choice. I don’t like to ask for help, at all, people who know me know that I try to do everything on my own. But with this I need help. Anything that I raise will help with all of the medical costs I have and will have. It will help pay for my medical treatments, traveling for medical appointments, medication, all of my medical expenses. Anything is appreciated and even if you can share this to others that is very much appreciated as well. I do have social media where I post about my chronic illnesses and try to raise awareness for all of the different ones I have. You can follow along my journey with me if you would like to. I will add my socials on here along with some of my main diagnosis I struggle with the most. Instagram: @faith.crps Tiktok: @faithjjohnson YouTube: @faithjjohnson Current main diagnosis: * Bilateral Leg Amputee * CRPS (Complex Regional Pain Syndrome) * POTS (Postural Orthostatic Tachycardia Syndrome) * Gastroparesis * Intestinal Failure * MCAS (Mast cell activation disorder) * Bladder Failure/Neurogenic Bladder * Ehlers Danlos syndrome (EDS) * Loey Dietz Syndrome * Chronic Migraine * Chronic Fatigue Syndrome * Chronic Pain * Severe Anemia * Hypoglycemia * Systemic Sclerosis * Autoimmune Liver Disease * Congestive Heart Failure * Pulmonary Hypertension * Small Fiber Neuropathy * Degenerative Disc Disease * Osteoarthritis * Multiple Blood Disorders * Spinal stenosis * Mitral valve regurgitation * Tricuspid regurgitation * Other genetic diseases * Other autoimmune diseases