Our beautiful little girl, Harlow, is facing more than any child should ever have to endure. Recently diagnosed with Neurofibromatosis (NF), a genetic condition that causes tumours to grow along the nerves, she now needs ongoing treatment, specialist care and the constant support of her family.

Harlow’s MRIs have revealed multiple tumours in her brain, including an optic pathway glioma that is affecting her vision and has caused colour blindness in her left eye. Further scans have also shown a large neck tumour, known as a plexiform neurofibroma, which extends towards the top of her lung.

This tumour is affecting the C3 vertebra in her neck, causing slight displacement, and is pushing her windpipe to the left. Because of its size and location, Harlow will require surgery to remove it.

The tumour affecting her vision has also increased slightly in size. As a result, she will need monthly intravenous chemotherapy in Adelaide for 12 months, along with ongoing specialist appointments and scans.

As a single mum of five, I have made the heartbreaking decision to leave my part-time job in October so I can be there for Harlow and focus on her medical care, treatment and the many trips to Adelaide she will need.

Any support will help ease the financial pressure of travel, medical-related expenses and everyday living costs while I dedicate my time to giving Harlow the care, comfort and support she needs. It would mean so much to know that we are not facing this journey alone.

No family should have to navigate something like this without support. Whether you are able to donate, share our appeal or leave a kind message, every gesture makes a difference and means more to us than words can express.

Thank you for standing beside our beautiful girl, Little Harlow Grace, and supporting her through this incredibly difficult journey. Your kindness, love and generosity mean the world to our family ❤️