Suzanne Lindskog is organizing this fundraiser on behalf of Carolyn Swift.
As many of you know, my niece Hannah had acute liver failure due to the flu which resulted in an emergency liver transplant 5 years ago. Though she initially recovered from the surgery, she has been hit with many setbacks that come with long term immune suppression and chronic illness. Hannah's new liver is doing great, but her quality of life is suffering. Along with several medical conditions, she has postural orthostatic tachycardia syndrome (POTS). POTS is an autonomic disorder which often occurs following a major illness or surgery. The disorder causes her heart rate to soar anytime she is upright and results in extreme fatigue, shortness of breath, dizziness, exercise intolerance, and digestive issues. No medications or treatments have worked so far. Hannah is unable to go to school regularly and is too exhausted to do the things that most 16 year -old girls do, like joining clubs, getting a part-time job, playing sports, learning to drive or hanging out with friends. She struggles to do basic things that require standing like walking up stairs, making a sandwich, and showering. Hannah has been given an amazing opportunity to get intensive, specialized treatment at Boston Children's Hospital in Waltham at the Pediatric Pain Rehabilitation Clinic (PPRC). The treatment is Monday- Friday for 8 hours a day for 4-6 weeks and will help to reset her autonomic nervous system and regain her strength and stamina. While insurance will pay for most of the treatment; her parents, my brother Chris and his wife Carolyn, will take turns staying with her in Waltham . They will be given time off from their jobs, but in Massachusetts the Family Medical Leave Act does not require an employer to pay for time off caring for a sick family member. In order for Hannah to attend the PPRC and get the medical treatment she needs, her parents need cover their lost income as well as lodging, food and travel expenses. They received word that there will be an opening for Hannah by the end of October and need to be sure they have the money needed before they can accept the spot. Attending PPRC is the last and best treatment for Hannah. If her health does not improve significantly, she may need to leave school permanently. Please consider contributing to Hannah's fund and help give her a chance to be a normal teenager, excited for her future. No amount is too small. Thank you for supporting Hannah.