Help Hailey Get Her Safety Bed
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$3,105 raised of
53 donations
Hi, my name is Pamela, Hailey’s mom. As some of you know, Hailey is our beautiful, strong-willed 3-year-old. What brings her the most joy in life is watching barrel racing, being outside running free, and drawing with chalk. She loves horses and pizza. She enjoys stimming (attempting to jump up and down) with her brother to her favorite shows or songs.
Hailey is a bright and determined 3-year-old with the most extreme form of autism (Level 3). She is nonverbal, has Pica (a condition where she tries to eat non-food items), and is epileptic. For the past two years, our family has fought tirelessly to get her medically necessary safety bed covered by insurance. Despite the support of her pediatrician, neurologist, ABA therapist, and professionals at CHOC Hospital, we have been denied over and over again. Even the Regional Center, which is supposed to be the payor of last resort, has failed us by setting impossible requirements that no medical professional agrees with. We have done everything asked of us, but there is nothing more we can do through the system.
Our goal is to purchase a Cubby safety bed, which is an advanced fully enclosed smart bed that Hailey can still see out of. It has padded corners to keep her safe when she is upset, overstimulated, or sleeping wildly. The enclosed sheets prevent her from getting underneath, which is a suffocation hazard with normal sheets. This bed also has a monitoring system so I can keep track of her seizure activity. We have many nights where Hailey will not sleep at all, and this bed will keep her in a safe space. It is specifically designed for kids with disabilities and epilepsy. Because of Hailey’s extreme Pica, we cannot use cheaper options for safety beds. She loves to eat, not just chew on, wood, so wooden beds are not safe for her. We would also like to add safety rails to all our windows because we have many windows that are low to the floor on our second floor. Specialized equipment needs to be purchased for plug safety, cord safety, and furniture safety, as well as custom height safety gates that will last her for years and prevent her from climbing over. Standard gates are too short and weak for her.
As Hailey’s parents, it is our job to keep her safe at home, but we no longer feel we can do that without help. We have tried every possible sleeping arrangement, but each has become dangerous for her. Hailey has split her cheek open, climbed over or knocked down gates (she’s our mini Hulk!), and when she was able to break out of her current safety bed, she found glass and attempted to eat, chew, and swallow it. She also tries to eat non-edible items like walls, cables, and even her mattresses and mesh bed walls. She is an extreme eloper, and we cannot open windows because she will push out screens. Every day, we worry about her safety, especially while she sleeps.
We have struggled with the decision to ask for help from friends and extended family. Unfortunately, due to Hailey’s frequent hospital stays and medical needs, I lost my job, and we simply cannot afford the safety bed or equipment she needs. We have lost faith in the medical system and the Regional Center after two years of trying everything. We would be so grateful for any help to keep our girl safe in her own home. Any donation or sharing our story would mean the world to us. Pride will not get in the way of keeping Hailey safe. Thank you for being part of Hailey’s village and for helping us give her the safety she deserves.
Hailey is a bright and determined 3-year-old with the most extreme form of autism (Level 3). She is nonverbal, has Pica (a condition where she tries to eat non-food items), and is epileptic. For the past two years, our family has fought tirelessly to get her medically necessary safety bed covered by insurance. Despite the support of her pediatrician, neurologist, ABA therapist, and professionals at CHOC Hospital, we have been denied over and over again. Even the Regional Center, which is supposed to be the payor of last resort, has failed us by setting impossible requirements that no medical professional agrees with. We have done everything asked of us, but there is nothing more we can do through the system.
Our goal is to purchase a Cubby safety bed, which is an advanced fully enclosed smart bed that Hailey can still see out of. It has padded corners to keep her safe when she is upset, overstimulated, or sleeping wildly. The enclosed sheets prevent her from getting underneath, which is a suffocation hazard with normal sheets. This bed also has a monitoring system so I can keep track of her seizure activity. We have many nights where Hailey will not sleep at all, and this bed will keep her in a safe space. It is specifically designed for kids with disabilities and epilepsy. Because of Hailey’s extreme Pica, we cannot use cheaper options for safety beds. She loves to eat, not just chew on, wood, so wooden beds are not safe for her. We would also like to add safety rails to all our windows because we have many windows that are low to the floor on our second floor. Specialized equipment needs to be purchased for plug safety, cord safety, and furniture safety, as well as custom height safety gates that will last her for years and prevent her from climbing over. Standard gates are too short and weak for her.
As Hailey’s parents, it is our job to keep her safe at home, but we no longer feel we can do that without help. We have tried every possible sleeping arrangement, but each has become dangerous for her. Hailey has split her cheek open, climbed over or knocked down gates (she’s our mini Hulk!), and when she was able to break out of her current safety bed, she found glass and attempted to eat, chew, and swallow it. She also tries to eat non-edible items like walls, cables, and even her mattresses and mesh bed walls. She is an extreme eloper, and we cannot open windows because she will push out screens. Every day, we worry about her safety, especially while she sleeps.
We have struggled with the decision to ask for help from friends and extended family. Unfortunately, due to Hailey’s frequent hospital stays and medical needs, I lost my job, and we simply cannot afford the safety bed or equipment she needs. We have lost faith in the medical system and the Regional Center after two years of trying everything. We would be so grateful for any help to keep our girl safe in her own home. Any donation or sharing our story would mean the world to us. Pride will not get in the way of keeping Hailey safe. Thank you for being part of Hailey’s village and for helping us give her the safety she deserves.
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