My niece Hadley was born in May 2025, and shortly after birth, we learned through a newborn screening that she has a rare metabolic disorder. Her liver cannot process protein, which causes ammonia to build up in her blood-a life-threatening situation if left untreated. They had no way to know or prepare for this diagnosis, and it has changed our lives in ways we never expected. Despite everything, Hadley is such a special little girl. She loves to smile, make adorable noises, and especially enjoys her bath time. Her joyful spirit inspires us every day to keep fighting for her health and happiness.

To give Hadley the best life possible, her mom and dad have chosen to move forward with a liver transplant, which she will need between the ages of 1 and 2. The transplant will take place at Seattle Children's Hospital, a two-hour drive from their home and out of their insurance network. The costs of the extended hospital stay, transplant team, and operation are overwhelming. Hadley’s dad is no longer working so he can stay home with Hadley, monitor her special diet, and watch for any symptoms. When Hadley gets her transplant, her mom will need to take 6-8 weeks off work, and will have to stay in Seattle the entire time to ensure her body accepts the new liver. After the transplant, they will make many trips back for follow-up care, and Hadley will need lifelong medication and monitoring.

My sister and her husband have never asked for help like this before, so I am advocating for them and we want to give Hadley the best chance at a healthy life. It was very difficult for them to share Hadley’s story but agreed because it can help her. Any support will go directly to her medical fund and help them stay by her side through this journey. Thank you for reading our story and considering a donation to help Hadley get the care she needs.